Lighting the Way to a Cure

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New England Chapter Meeting

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Nov 15, 2020 @ 12:00 pm - 1:00 pm

November 15, 12:00PM ET

Hey, New Englanders!

It’s been a while since we’ve been able to see each other, and we miss you! We know there are some new folks out there as well that we want to welcome into our community. Until we can get together in-person again, we’d love for you to join us for a little getting-to-know-each-other social hour over Zoom! Mark your calendars for 12-1pm on Nov. 15th (don’t worry, it’s an 8-o’clock Pats game).

On Nov. 15th, Join us HERE!

Just to give you a sneak preview, here are three things we’d like everyone to share:

  • Name/Occupation/When were you diagnosed?
  • Some coping mechanisms and/or adaptations you’ve found successful for living with your FSHD
  • What’ve you been finding to do for fun these days?

We hope this will be a jumping-off point to lots of great conversation. We can’t wait to spend time with our community! Please let us know you’re coming by RSVP’ing here:


Nov 15, 2020
12:00 pm - 1:00 pm
Event Categories:


New England Chapter
View Organizer Website


Boston, MA 02129 United States + Google Map