Lighting the Way to a Cure

Loading Events

New York City Family Day Conference

  • This event has passed.

Nov 16, 2019 @ 10:00 am - 3:30 pm

New York Athletic Club
Presidents Room
180 Central Park South
New York, NY 10019

Advance registration required. Please click the button below. Deadline November 11, 2019.

Download the Meeting Flyer

Download the 2019 NYC FSHD Family Day Agenda

Join us for our first-ever New York City FSHD Family Day Conference to meet top researchers, clinicians, fellow patients, and family members. You’ll hear about ongoing clinical trials and connect with the outstanding team at Columbia University Medical Center. Speakers include Michio Hirano, MD, co-director of the CUMC Muscular Dystrophy Association clinic, and director of the H. Houston Merritt Center for Muscular Dystrophy and Related Diseases; and Matthew Harms, MD, associate professor of neurology, Jinsy Andrews, MD, assistant professor of neurology, and Fondre Goulbourne, DPT, physical therapist. Advances in treatments for FSHD will be discussed by Michelle Mellion, MD, medical director at Fulcrum Therapeutics, and Justin Cohen, PhD, at Yale University. Jennifer Egert, PhD, and Jennifer Jo Brout, PsyD, will be moderating a discussion about the psychosocial aspects of living with FSHD.

We’ll be meeting at the legendary New York Athletic Club. Note, the club has a Dress Code: “Attire and personal appearance shall be in good taste and mindful of the Club’s traditional atmosphere. Recommend attire includes slacks/collared and tucked in shirts for men; blouses or sweaters/slacks or skirts for woman. No jeans, t-shirts, sneakers or flip-flops (unless necessary due to a medical condition). More about the dress code.

 The closest parking is the Icon Parking Garage, located at W 58th Street between 7th and 6th Street (across the street and on the same block as the rear entrance to the NYAC.)

Register Button


New York Athletic Club
180 Central Park South - New York
New York, NY United States
+ Google Map