Parents’ Roundtable

Parents’ Roundtable

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT

New Schedule: The Parents’ Roundtable will meet quarterly starting in 2026. We will meet in January, April, July, and October of 2026.

Join us for our Parents’ Roundtable on the 3rd Tuesday, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible, and to advocate for more research and clinical trials for children. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.

We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks.

Ally Roets & Sam Ray
Parents’ Roundtable Directors

Learn more about the Parents’ Roundtable