Lighting the Way to a Cure

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Dec 14 @ 8:00 pm - 9:00 pm

Tuesday, December 14

9:00 PM ET | 8:00 PM CT | 7:00 PM MT | 6:00 PM PT

This month’s guests will be Sam Ray, a 15-year-old, in Tucson, AZ, who is living with Early-onset FSHD. Sam will talk with Tim about how his FSHD motivated him to explore exoskeleton technology, and fostered his love of flying drones. Sam will share the story of his struggles to obtain an adaptive driver’s license and talk about what it is like to be a high school student with FSHD.

Watch the video podcast premiere on the 2nd Tuesday of every month, either on YouTube or Facebook. Share your thoughts, or post questions and comments in the comments section. You can also access the podcast on most any streaming channel within a few days of the video premiere.

Mark your calendar. Invite your friends to a listening party and chat with fellow viewers in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice.

Details

Date:
Dec 14
Time:
8:00 pm - 9:00 pm
Event Categories:
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https://www.facebook.com/FSHDSociety/

Venue

Facebook Live
United States + Google Map