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Sharegiver Hour – What do you miss most?

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Apr 26 @ 8:00 pm - 9:00 pm

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT

Join us this month to share stories about activities you and your loved ones with FSHD once enjoyed but find increasingly difficult – or impossible – to continue. It’s okay to mourn. How do we overcome such losses? Have you discovered new ways of enjoying your time together?

This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers.

Please respect our rules restricting this meeting to caregivers (or “sharegivers,” as Isaac Prilleltensky has proposed, because providing care to loved ones is a two-way street). Because we don’t want to publicly post the Zoom meeting link (to avoid “Zoom bombers”), please register by clicking on the button below.

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Apr 26
8:00 pm - 9:00 pm
Event Categories:


Zoom Virtual Meeting
United States