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CarePartner Hour: We need a vacation!

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Jun 28, 2022 @ 8:00 pm - 9:00 pm

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT

How can you enjoy a real vacation when you’re caught up with concerns about caring for your loved one. It takes a huge amount of planning and anticipating contingencies to travel at all. How do you regain that sense of freedom and spontaneity? Share your stories in our safe space. Your input is vital in helping us develop our monthly meeting into a valuable resource for you.

This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other care partners (the term we prefer to “caregiver” because caring is a partnership, not a one-way street).

Please respect our rules restricting this meeting to care partners. Because we don’t want to publicly post the Zoom meeting link (to avoid “Zoom bombers”), please register by clicking on the button below.

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Jun 28, 2022
8:00 pm - 9:00 pm
Event Categories:


Zoom Virtual Meeting
United States