8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT
Our topic this month is “Talking about FSHD with family and friends.” Sharing a diagnosis when first given, planning for family, and planning ahead for care as we age.
This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other care partners (the term we prefer to “caregiver” because caring is a partnership, not a one-way street).
Please respect our rules restricting this meeting to care partners. Because we don’t want to publicly post the Zoom meeting link (to avoid “Zoom bombers”), please register by clicking on the button below.