- Who We Are
- Understanding FSHD
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Lighting the Way to a Cure
8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT
Our topic this month: How do we decide when/if we need outside help either part time or live-in? It’s a big step and not everyone in the family be on the same page. Are you approaching this decision point or in the midst of negotiating with your loved ones? Have you made this transition and what lessons can you share?
This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other care partners (the term we prefer to “caregiver” because caring is a partnership, not a one-way street).
Please respect our rules restricting this meeting to care partners. Because we don’t want to publicly post the Zoom meeting link (to avoid “Zoom bombers”), please register by clicking on the button below.