Loading Events

CarePartner Hour – Purchasing equipment

  • This event has passed.

Aug 30, 2022 @ 8:00 pm - 9:00 pm

8:00 – 9:00 PM ET | 7-8pm CT | 6-7pm MT | 5-6pm PT

We’re going to cover two topics this month. The first topic is “Have you purchased equipment to help with your FSHD partner’s activity?  Like lifts, power wheelchairs, braces, hearing aids, vehicles, ramps installed for access in your house, staircase lifts?  Was it recommended by doctor or PT?  How did you know what to get and how was it paid for?”
Our second topic is “What kind of participation are you and your partner planning for the Walk N Roll?  How do you feel about the event?  Does it work for you?  Have you participated in the past?”

This monthly meeting is for those of you who are providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other care partners (the term we prefer to “caregiver” because caring is a partnership, not a one-way street).

Please respect our rules restricting this meeting to care partners. Because we don’t want to publicly post the Zoom meeting link (to avoid “Zoom bombers”), please register by clicking on the button below.

Register Button


Aug 30, 2022
8:00 pm - 9:00 pm
Event Categories:


Zoom Virtual Meeting
United States