Lighting the Way to a Cure

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South Carolina Chapter Meeting

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Apr 1 @ 8:00 pm - 9:00 pm

All are invited to the first “Chapter Chat” hosted by the FSHD Society South Carolina Chapter.    This virtual (online) meeting will be held on Wednesday April 1 at 8pm.  This ‘chat’ is being held to see how everyone is doing and if this virus situation is causing anyone issues….   a chance to share and ‘vent’ if needed.  Groups from other states will be joining too.  Please join the ZOOM meeting from your computer or phone.

DATE: Wednesday, April 1st       TIME: 8-9pm ET

PLACE: Login here:

My name is Frank Hanley,  and I recently started the South Carolina Chapter.   We had our initial meeting in September 2019,  and our official Chapter Launch meeting was in February.

With the current Corona virus situation, we are moving to a virtual format until this emergency passes and things get back to normal. I postponed this meeting a couple of weeks to see how the virus situation would go, and unfortunately it looks like it will be with us for a while longer.   With the SC Chapter up and running,  I am reaching out to individuals and families affected by FSHD to join the SC Chapter and help us grow a strong local  FSHD community.

If you can’t make this meeting,  please contact me and I will include you in invites to upcoming meetings.

Regards and stay well.

~Frank Hanley, South Carolina Chapter Director (


Apr 1
8:00 pm - 9:00 pm
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South Carolina Chapter