Lighting the Way to a Cure

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Virtual Meeting with FSHD Families and Friends in North/South Dakota and Western Minnesota!

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Oct 3, 2020 @ 11:00 am - 12:00 pm

Please join us for our very first (virtual) gathering of local FSHD families and friends in North/South Dakota and Western Minnesota!

While COVID-19 has prevented us from meeting in person over the summer, we have decided to meet virtually over zoom to get to know one-another in hopes that one day soon we are able to meet in person.

When: Saturday October 3rd, 11a-12p Central Time

Where: From the comfort of your own home, virtually via zoom (link below)

Hosted by fellow FSHer Bryan Domholt from Fargo, ND.

Also joining us from the FSHD Society will be Mark Stone (CEO) and Beth Johnston (Chief Community Engagement Officer) to update us on the happenings in research, clinical trials, and in the FSHD Community overall.

We hope you can join us!

Please RSVP to Beth Johnston let us know you’ll be there at


Join from your computer or tablet:

Meeting ID: 885 9107 8162, Passcode: FSHD


Or by Phone: 312 626 6799, Meeting ID: 885 9107 8162




Oct 3, 2020
11:00 am - 12:00 pm


FSHD Society
(781) 301-6060
View Organizer Website


North Dakota
Fargo, ND United States + Google Map