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- Understanding FSHD
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Lighting the Way to a Cure
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT
This month, Jane Earl will take us on a virtual tour of her home to show us how she has designed it for maximum accessibility as her FSHD has progressed. Her experiences have turned her into an advocate for universal design in her community. You can read more about her condo renovation here: Universal design is smart design.
Our monthly Zoom meeting on Wellness is held on the second Monday of each month at 5:00-6:00 pm ET. The Wellness Hour is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, share challenges, talk about what works for you, and feel validated and supported in whatever you may be going through. Each month, we’ll have a conversation starter topic, but this is an informal gathering and if the discussion veers off in other directions, that’s OK! We hope you’ll drop by to enjoy the company of some of the wonderful people in our community.
If you are interested, please register by clicking on the link below. You only need to register once for the monthly series. You’ll receive notifications from Zoom with the meeting information.