Lighting the Way to a Cure

Loading Events

Wellness Hour (Virtual Meeting)

  • This event has passed.

Feb 8, 2021 @ 5:00 pm - 6:00 pm

Gathering at FSHD Connect

This is our monthly Zoom meeting on Wellness, held on the second Monday of each month at 5:00-6:00 pm ET (if Monday is a national holiday, the meeting will be held on Tuesday). It is open to everyone in the FSHD community. This is your time to enjoy the company of fellow FSHers, share challenges, talk about what works for you, and feel validated and supported in whatever you may be going through.

Our January meeting was fantastic! Attendance is growing, and we had a very lively conversation about dealing with various sleep issues, from waking up during the night because of painful sleeping positions to sleep apnea. Several members spoke about the use of CBD to alleviate pain and help with sleep. We also discussed issues around staying mobile, transitioning to use of a wheelchair, and keeping a positive outlook. This month, we’ll be talking about pain management, but all topics are on the table. We hope you’ll join us!

If you are interested, please register by clicking on the link below. You only need to register once for the monthly series. You’ll receive notifications from Zoom with the meeting information.