Lighting the Way to a Cure

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Western PA Chapter Meeting: POSTPONED

Apr 5 @ 1:00 pm - 3:00 pm

Colorado FSHD Chapter Meeting

Please note: Due to coronavirus concerns, we will be changing the upcoming April meeting to an all-virtual format. Exact time/date/agenda will be announced very soon. We look forward to “seeing” you all soon!

You won’t want to miss our next Chapter meeting as there is so much to share! Our anticipated agenda  includes:

  • the Voice of the Patient Forum (or patient-focused drug development meeting) on April 21 in Washington, D.C., and the pre-event surveys which will guide the format of the critical discussions and polling questions at the Forum.
  • World FSHD Day on June 20.
  • 2020 FSHD Connect, the biennial educational and networking gathering of FSHD patients and families, researchers, and clinicians, also in Washington, D.C., on June 27, 28.
  • The FSHD Society’s Therapeutic Accelerator Initiative and Fulcrum Therapeutics ‘ phase 2b clinical trial of losmapimod for FSHD.

Anna Gilmore from the FSHD Society will join us via video conference to discuss preparations for our first Walk & Roll fundraiser in the fall, including recruitment, marketing, and finding sponsors.

RSVP for this event by clicking here

You can log in online or call in using the info below:

Join us from your computer or tablet: https://zoom.us/j/909292066

Or by phone: 646-558-8656, Meeting ID: 909-292-066

Here’s a video explaining how to join a Zoom meeting: https://www.youtube.com/embed/vFhAEoCF7jg?rel=0&autoplay=1&cc_load_policy=1

We look forward to “seeing” as many of you as possible in April!

RSVP for this event by clicking here

~Mark Christman, Chapter Director

Questions? Contact Mark at WesternPAChapter@FSHDSociety.org.

Details

Date:
Apr 5
Time:
1:00 pm - 3:00 pm
Event Categories:
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