First Wednesday of every month
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT
This is our mutual support and social group for women of all ages who are living with FSHD. The topic this month was suggested by a woman with FSHD who was planning to have a mastectomy and reconstructive surgery. She and her surgeon were wondering about the impact of surgery on muscles that might be affected by FSHD, and also on how FSHD-affected muscle might impact the outcome of the procedure. We realized there has been no research on this topic and turned as always to our best source for insights: our community. If you have experience with breast cancer treatment and mastectomy, come and share your story. If you are yourself contemplating the options, this is the place to ask questions. And if you haven’t faced this situation, join us too to build your knowledge.
We created this women-only space to discuss health, self-care, and any other topics that we find easier to discuss with other females. Our group is hosted and facilitated by a group of volunteers. We may suggest articles and conversation-starters to get each meeting going, but this is truly your space to share what’s on your mind.
Please register below and we will send out reminders with the Zoom link on the day of each monthly gathering. This is a Zoom meeting and we prefer not to share the link on a public website (to discourage Zoom bombers).