First Wednesday of every month
5:00 pm ET | 4:00 pm CT | 3:00 pm MT | 2:00 pm PT
Warmer weather will soon be here!! Many in the WOW group have talked excitedly of travel plans. With travel comes a couple of high-level concerns for those of us with neuromuscular diseases. The challenges of finding an appropriate ADA available restroom and the challenge of incontinence. Please join us, as we discuss these delicate and challenging topics.
This is our mutual support and social group for women of all ages who are living with FSHD. We created this women-only space to discuss health, self-care, and any other topics that we find easier to discuss with other females. Our group is hosted and facilitated by a group of volunteers. We may suggest articles and conversation-starters to get each meeting going, but this is truly your space to share what’s on your mind.
Please register below and we will send out reminders with the Zoom link on the day of each monthly gathering. This is a Zoom meeting and we prefer not to share the link on a public website (to discourage Zoom bombers).