Young Adults

Young Adults Monthly Meeting

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT

Join us for the next Young Adults Gathering Place as we welcome special guest Rick Whitehead for an open and informative conversation about his personal journey with abdominal surgery and the use of supportive devices. Whether you’re considering a procedure, managing post-surgical recovery, or just curious about what to expect, this is a chance to hear real-life insights from someone who’s been there.

Bring your questions! You might be wondering:

• What was recovery like, and how long did it take?
• How do supportive devices help with everyday activities?
• What tips does Rick have for preparing—physically and emotionally—for surgery?

This is a great opportunity to connect, learn, and feel supported by others who truly understand.

FSHD Young Adults is a social and support group focused on encouraging and empowering young adults impacted by FSHD. We created this space specifically for younger FSHDers to connect, collaborate, and provide networking opportunities. Whether you’re just graduating, starting a new position, or already on a career track, the FSHD Young Professionals group will help you develop a valuable network of friends facing similar challenges.

Our group is hosted and facilitated by volunteers who are excited to connect with you. We meet once a month via Zoom. Mark your calendar for the third Monday at 8pm ET/5pm PT. Once you join the group, no need to register again; you will be sent regular reminders and the Zoom link.

You can also join the conversation on Discord.

To contact us directly, please email: youngprofessionals@fshdsociety.org.