8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT
How do you navigate an intimate relationship when you have a condition like FSHD? How do you even get started? What do you put on a dating app? How do you face the fear of rejection? When do you break the news to someone? When your symptoms progress, how do you overcome the challenges that come up in daily life, the support you might need from your partner? We’ll be joined by Nicole and Ryan Levinson, who have shared an amazing life of adventure with openness, honesty and optimism.
FSHD Young Adults is a social and support group focused on encouraging and empowering young adults impacted by FSHD. We created this space specifically for younger FSHDers to connect, collaborate, and provide networking opportunities. Whether you’re just graduating, starting a new position, or already on a career track, the FSHD Young Professionals group will help you develop a valuable network of friends facing similar challenges.
Our group is hosted and facilitated by volunteers who are excited to connect with you. We meet once a month via Zoom. Mark your calendar for the third Monday at 8pm ET/5pm PT. Once you join the group, no need to register again; you will be sent regular reminders and the Zoom link.
You can also join the conversation on Discord.
To contact us directly, please email: youngprofessionals@fshdsociety.org.
8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT
How do you navigate an intimate relationship when you have a condition like FSHD? How do you even get started? What do you put on a dating app? How do you face the fear of rejection? When do you break the news to someone? When your symptoms progress, how do you overcome the challenges that come up in daily life, the support you might need from your partner? We’ll be joined by Nicole and Ryan Levinson, who have shared an amazing life of adventure with openness, honesty and optimism.
FSHD Young Adults is a social and support group focused on encouraging and empowering young adults impacted by FSHD. We created this space specifically for younger FSHDers to connect, collaborate, and provide networking opportunities. Whether you’re just graduating, starting a new position, or already on a career track, the FSHD Young Professionals group will help you develop a valuable network of friends facing similar challenges.
Our group is hosted and facilitated by volunteers who are excited to connect with you. We meet once a month via Zoom. Mark your calendar for the third Monday at 8pm ET/5pm PT. Once you join the group, no need to register again; you will be sent regular reminders and the Zoom link.
You can also join the conversation on Discord.
To contact us directly, please email: youngprofessionals@fshdsociety.org.