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DTSTART;VALUE=DATE:20261010
DTEND;VALUE=DATE:20261011
DTSTAMP:20260929T203500Z
CREATED:20260311T222540Z
LAST-MODIFIED:20260929T203500Z
UID:10004649-1791590400-1791676799@www.fshdsociety.org
SUMMARY:Long Island Walk & Roll to Cure FSHD 2026
DESCRIPTION:Rescheduled to Oct. 10 due to weather!\n2026 Long Island Walk & Roll to Cure FSHD\nRegister to “walk or roll” today! Invite your family\, friends\, club members\, neighbors\, co-workers\, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there\, you can share your story on social media and via email\, and invite others to join you in getting us closer to a cure!  \nThe Walk & Roll to Cure FSHD is the FSHD Society’s largest\, annual fundraiser. It is also the ONLY signature event in North America dedicated to raising funds for FSHD research\, cures\, and community support.  \nRegister for the Walk & Roll \n 
URL:https://www.fshdsociety.org/event/long-island-walk-2026/
LOCATION:FL
CATEGORIES:New York City Chapter Events,Walk & Roll
ATTACH;FMTTYPE=image/png:https://www.fshdsociety.org/wp-content/uploads/2026/03/LongIsland-26Walk-Calendar-Cover.png
ORGANIZER;CN="NYC Chapter":MAILTO:nycchapter@fshdsociety.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261010
DTEND;VALUE=DATE:20261011
DTSTAMP:20260814T173337Z
CREATED:20260814T173337Z
LAST-MODIFIED:20260814T173337Z
UID:10004658-1791590400-1791676799@www.fshdsociety.org
SUMMARY:North Texas Walk & Roll to Cure FSHD 2026
DESCRIPTION:2026 North Texas Walk & Roll to Cure FSHD\nRegister to “walk or roll” today! Invite your family\, friends\, club members\, neighbors\, co-workers\, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there\, you can share your story on social media and via email\, and invite others to join you in getting us closer to a cure!  \nThe Walk & Roll to Cure FSHD is the FSHD Society’s largest\, annual fundraiser. It is also the ONLY signature event in North America dedicated to raising funds for FSHD research\, cures\, and community support.  \nRegister for the Walk & Roll
URL:https://www.fshdsociety.org/event/north-texas-walk-2026/
LOCATION:FL
CATEGORIES:North Texas Chapter Events
ATTACH;FMTTYPE=image/png:https://www.fshdsociety.org/wp-content/uploads/2026/03/Texas-26Walk-Calendar-Cover.png
ORGANIZER;CN="North Texas Chapter":MAILTO:northtexaschapter@fshdsociety.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261011
DTEND;VALUE=DATE:20261012
DTSTAMP:20260312T184914Z
CREATED:20260311T220439Z
LAST-MODIFIED:20260312T184914Z
UID:10004640-1791676800-1791763199@www.fshdsociety.org
SUMMARY:Atlanta Walk & Roll to Cure FSHD 2026
DESCRIPTION:2026 Atlanta Walk & Roll to Cure FSHD\nRegister to “walk or roll” today! Invite your family\, friends\, club members\, neighbors\, co-workers\, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there\, you can share your story on social media and via email\, and invite others to join you in getting us closer to a cure!  \nThe Walk & Roll to Cure FSHD is the FSHD Society’s largest\, annual fundraiser. It is also the ONLY signature event in North America dedicated to raising funds for FSHD research\, cures\, and community support.  \nRegister for the Walk & Roll \n 
URL:https://www.fshdsociety.org/event/atlanta-walk-roll-to-cure-fshd-2026/
LOCATION:FL
CATEGORIES:Atlanta Chapter Events,Walk & Roll
ATTACH;FMTTYPE=image/png:https://www.fshdsociety.org/wp-content/uploads/2026/03/Atlanta-26Walk-Calendar-Cover.png
ORGANIZER;CN="Atlanta Chapter":MAILTO:AtlantaChapter@fshdsociety.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261012T163000
DTEND;TZID=America/New_York:20261012T180000
DTSTAMP:20260916T210642Z
CREATED:20260916T210641Z
LAST-MODIFIED:20260916T210642Z
UID:10004763-1791822600-1791828000@www.fshdsociety.org
SUMMARY:Wellness Hour Meeting - October 2026
DESCRIPTION:Oct 12\, 2026\n4:30 PM ET | 3:30 CT | 2:30 MT | 1:30 PT \n\nExperiencing Loss and Grief\nLiving with a progressive condition like FSHD often causes grief over the loss of function and the challenges this represents. Join us in this safe space to explore different ways of acknowledging and working with these emotions. \nLed by: Dee Squire and Gregg Lichtenstein \nJoin us at 4:30 p.m. EST – 30 minutes before the main session – for some informal conversation with Rick Whitehead. \nRemember to register in advance in order to receive the link for the session. \nRegister Now
URL:https://www.fshdsociety.org/event/wellness-hour-oct26/
LOCATION:Zoom Virtual Meeting\, United States
ATTACH;FMTTYPE=image/png:https://www.fshdsociety.org/wp-content/uploads/2025/05/Wellness-Hour-header.png
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
GEO:39.011902;-98.4842465
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261013
DTEND;VALUE=DATE:20261014
DTSTAMP:20251222T210641Z
CREATED:20251222T210316Z
LAST-MODIFIED:20251222T210641Z
UID:10004522-1791849600-1791935999@www.fshdsociety.org
SUMMARY:FSHD Straight Talk with Tim Hollenback
DESCRIPTION:On the second and fourth Tuesday of every month\, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich\, full lives and diving into their experiences with FSHD. \nYou can find new episodes on YouTube and your favorite podcast app. Subscribe to make sure you never miss an episode!
URL:https://www.fshdsociety.org/event/straight-talk-262/2026-10-13/
LOCATION:FL
CATEGORIES:FSHD Radio
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2024/12/Straight-Talk-Closing-Image.jpg
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261014T180000
DTEND;TZID=America/New_York:20261014T190000
DTSTAMP:20260908T164042Z
CREATED:20260908T164042Z
LAST-MODIFIED:20260908T164042Z
UID:10004756-1792000800-1792004400@www.fshdsociety.org
SUMMARY:Eastern & Central Multi-Chapter Meeting
DESCRIPTION:October 14\, 2026 | 6pm ET/5pm CT \n\nThe Understanding and Practice of Emotional Well-Being\nWe will consider the meaning of well-being\, how we define it personally\, and ways we can enhance it in our daily lives. Grounded in shared human experience\, we recognize that emotional well-being impacts everyone – regardless of their connection to FSHD. \nAfter the presentation\, there will be time to join your chapter in a breakout room. \nRegister Now
URL:https://www.fshdsociety.org/event/10-14-26-east-central-chapters/
LOCATION:Zoom Virtual Meeting\, United States
CATEGORIES:Atlanta Chapter Events,Central Coast Florida Chapter Events,Central Texas Chapter Events,Chicagoland Chapter Events,Columbus Chapter Events,Connecticut Chapter Events,Dakotas Chapter Events,Daytona Beach Chapter Events,East Tennessee Chapter Events,Greater Philadelphia Chapter Events,Kansas City Chapter Events,Michigan Chapter Events,Mid Atlantic Chapter Events,Minnesota Chapter Events,NE Florida Chapter Events,New England Chapter Events,New York City Chapter Events,North Carolina Chapter Events,North Texas Chapter Events,Ontario Chapter Events,Quebec Chapter Events,South Carolina Chapter Events,Southwest Florida Chapter Events,St. Louis Chapter Events,Tampa Chapter Events,Virginia Chapter Events,Western Pennsylvania Chapter Events,Wisconsin Chapter Events
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2025/07/East-Central-Chapter-Meeting-1.jpg
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
GEO:39.011902;-98.4842465
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261015T170000
DTEND;TZID=America/Chicago:20261015T180000
DTSTAMP:20261006T193540Z
CREATED:20261006T193540Z
LAST-MODIFIED:20261006T193540Z
UID:10004774-1792083600-1792087200@www.fshdsociety.org
SUMMARY:Indiana Chapter Virtual Meeting
DESCRIPTION:Thursday\, October 15th | 6pm ET/5pm CT \n\nJoin us at our newly established “Third Thursday” Chapter Meeting! \nRegister Now
URL:https://www.fshdsociety.org/event/indy-10-15-26/
LOCATION:Zoom Virtual Meeting\, United States
CATEGORIES:Indiana Chapter Events
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2026/10/Indiana-Chapter_PPT-Title-Slide.jpg
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
GEO:39.011902;-98.4842465
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20261015T180000
DTEND;TZID=America/Denver:20261015T190000
DTSTAMP:20260908T164906Z
CREATED:20260908T164514Z
LAST-MODIFIED:20260908T164906Z
UID:10004757-1792087200-1792090800@www.fshdsociety.org
SUMMARY:Mountain & Pacific Multi-Chapter Meeting
DESCRIPTION:October 15\, 2026 | 6pm MT/5pm PT \n\nThe Understanding and Practice of Emotional Well-Being\nWe will consider the meaning of well-being\, how we define it personally\, and ways we can enhance it in our daily lives. Grounded in shared human experience\, we recognize that emotional well-being impacts everyone – regardless of their connection to FSHD. \nAfter the presentation\, there will be time to join your chapter in a breakout room. \nRegister Now
URL:https://www.fshdsociety.org/event/10-15-26-pacific-mountain-chapters/
LOCATION:Zoom Virtual Meeting\, United States
CATEGORIES:Alberta Chapter Events,Arizona Chapter Events,Bay Area Chapter Events,British Columbia Chapter Events,Colorado Chapter Events,Dakotas Chapter Events,Idaho Chapter Events,Los Angeles Chapter Events,Nevada Chapter Events,New Mexico Chapter Events,Pacific Northwest Chapter Events,Sacramento Chapter Events,San Diego Chapter Events,Utah Chapter Events
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2025/07/Pacific-Mountain-Chapter-Meeting.jpg
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
GEO:39.011902;-98.4842465
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261017T140000
DTEND;TZID=America/New_York:20261017T153000
DTSTAMP:20261009T165908Z
CREATED:20261009T165908Z
LAST-MODIFIED:20261009T165908Z
UID:10004776-1792245600-1792251000@www.fshdsociety.org
SUMMARY:Tampa Chapter Gathering
DESCRIPTION:2:00-3:30pm ET\nTrue Food Kitchen – 3645 Midtown Dr\, Tampa\, FL 33607 \n\nWe are looking to gather the FSHD Community in the Tampa Bay Area. We’d like to get the Chapter back together and talk about interest in starting a Walk & Roll event here as well. \nRegister Now
URL:https://www.fshdsociety.org/event/tampa-10-17-26/
LOCATION:True Food Kitchen – 3645 Midtown Dr\, Tampa\, FL 33607\, True Food Kitchen - 3645 Midtown Dr\, Tampa\, FL\, 33607\, United States
CATEGORIES:Tampa Chapter Events
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2024/01/Tampa-Chapter_PPT-Title-Slide.jpg
ORGANIZER;CN="Tampa Chapter":MAILTO:tampachapter@fshdsociety.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261019T190000
DTEND;TZID=America/New_York:20261019T200000
DTSTAMP:20260916T210852Z
CREATED:20260916T210852Z
LAST-MODIFIED:20260916T210852Z
UID:10004764-1792436400-1792440000@www.fshdsociety.org
SUMMARY:Chair Yoga with Donna
DESCRIPTION:Oct 19\, 2026\n7:00 PM ET/6pm CT/5pm MT/4pm PT \n\nThis class\, taught by Donna Russo\, BA in Dance from Mercyhurst University and certified in Chair Yoga\, concentrates on breathing techniques and meditation to help relieve stress. Donna is familiar with adapting Yoga. Yoga is for everyone: it reduces stress\, increases flexibility\, relaxes your breathing\, creates body awareness\, is low-impact\, and works with finding alternative ways to help troubled muscle areas. Join in and let’s work together! \nRegister Now
URL:https://www.fshdsociety.org/event/chair-yoga-oct19/
LOCATION:Zoom Virtual Meeting\, United States
CATEGORIES:Feeling Fit with FSHD
ATTACH;FMTTYPE=image/png:https://www.fshdsociety.org/wp-content/uploads/2025/05/Feeling-Fit-header.png
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
GEO:39.011902;-98.4842465
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261019T200000
DTEND;TZID=America/New_York:20261019T210000
DTSTAMP:20260924T145239Z
CREATED:20260916T205149Z
LAST-MODIFIED:20260924T145239Z
UID:10004759-1792440000-1792443600@www.fshdsociety.org
SUMMARY:Young Adults with FSHD - October Meeting
DESCRIPTION:Oct 19\, 2026 8pm ET | 7pm CT | 6pm MT | 5pm PT \n\n“What are you Into? Hobbies and Interests Hangout” \nCome join the Young Adults group for some social time with peers! We’ll have a casual discussion on our hobbies and interests. We’d love to have you join us or just listen in if you prefer. Maybe you’ll meet peers with shared interests! \nRegister Now
URL:https://www.fshdsociety.org/event/young-adults-oct26/
LOCATION:Zoom Virtual Meeting\, United States
CATEGORIES:Young Adults
ATTACH;FMTTYPE=image/png:https://www.fshdsociety.org/wp-content/uploads/2025/05/Young-Adults-header.png
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
GEO:39.011902;-98.4842465
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261020T200000
DTEND;TZID=America/New_York:20261020T210000
DTSTAMP:20260916T211129Z
CREATED:20260916T211128Z
LAST-MODIFIED:20260916T211129Z
UID:10004601-1792526400-1792530000@www.fshdsociety.org
SUMMARY:October 2026 Parents Roundtable Meeting
DESCRIPTION:October 20\, 2026\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \n\nGuest: Jessica Duis – Vice President Clinical Development\, Epicrispr Biotechnologies\nRegister Now
URL:https://www.fshdsociety.org/event/parents-rountable-5/
LOCATION:Zoom Virtual Meeting\, United States
CATEGORIES:Parents' Roundtable
ATTACH;FMTTYPE=image/png:https://www.fshdsociety.org/wp-content/uploads/2025/05/Parents-Roundtable-header.png
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
GEO:39.011902;-98.4842465
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261024
DTEND;VALUE=DATE:20261025
DTSTAMP:20260312T184857Z
CREATED:20260311T221703Z
LAST-MODIFIED:20260312T184857Z
UID:10004645-1792800000-1792886399@www.fshdsociety.org
SUMMARY:Columbus Walk & Roll to Cure FSHD 2026
DESCRIPTION:2026 Columbus Walk & Roll to Cure FSHD\nRegister to “walk or roll” today! Invite your family\, friends\, club members\, neighbors\, co-workers\, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there\, you can share your story on social media and via email\, and invite others to join you in getting us closer to a cure!  \nThe Walk & Roll to Cure FSHD is the FSHD Society’s largest\, annual fundraiser. It is also the ONLY signature event in North America dedicated to raising funds for FSHD research\, cures\, and community support.  \nRegister for the Walk & Roll \n 
URL:https://www.fshdsociety.org/event/columbus-walk2026/
LOCATION:FL
CATEGORIES:Columbus Chapter Events,Walk & Roll
ATTACH;FMTTYPE=image/png:https://www.fshdsociety.org/wp-content/uploads/2026/03/Columbus-26Walk-Calendar-Cover.png
ORGANIZER;CN="Columbus Chapter":MAILTO:ColumbusChapter@fshdsociety.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261025
DTEND;VALUE=DATE:20261026
DTSTAMP:20260819T143557Z
CREATED:20260311T225523Z
LAST-MODIFIED:20260819T143557Z
UID:10004665-1792886400-1792972799@www.fshdsociety.org
SUMMARY:Drum & Roll to Cure FSHD 2026
DESCRIPTION:2026 Drum & Roll to Cure FSHD\nRegister to “walk or roll” today! Invite your family\, friends\, club members\, neighbors\, co-workers\, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there\, you can share your story on social media and via email\, and invite others to join you in getting us closer to a cure!  \nThe Walk & Roll to Cure FSHD is the FSHD Society’s largest\, annual fundraiser. It is also the ONLY signature event in North America dedicated to raising funds for FSHD research\, cures\, and community support.  \nRegister for the Walk & Roll
URL:https://www.fshdsociety.org/event/drum-roll-to-cure-fshd-2026/
LOCATION:FL
CATEGORIES:Walk & Roll,Western Pennsylvania Chapter Events
ATTACH;FMTTYPE=image/png:https://www.fshdsociety.org/wp-content/uploads/2026/03/Western-PA-26Walk-Calendar-Cover.png
ORGANIZER;CN="Western Pennsylvania Chapter":MAILTO:WesternPAChapter@fshdsociety.org.
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261025T140000
DTEND;TZID=America/Chicago:20261025T150000
DTSTAMP:20260918T150252Z
CREATED:20260918T150252Z
LAST-MODIFIED:20260918T150252Z
UID:10004769-1792936800-1792940400@www.fshdsociety.org
SUMMARY:Dakotas Chapter Meeting
DESCRIPTION:2:00-3:00pm CT\nBethany Retirement Living – 4255 30th Ave S\, Fargo\, ND 58104 \n\nJoin the Dakotas Chapter for our next in-person meeting! We’ll have an opportunity to connect with each other and give a recap of our recent Walk & Roll. \nRegister Now
URL:https://www.fshdsociety.org/event/dakotas-10-25-26/
LOCATION:Bethany Retirement Living – 4255 30th Ave S\, Fargo\, ND 58104\, Bethany Retirement Living - 4255 30th Ave S\, Fargo\, ND\, 58104\, United States
CATEGORIES:Dakotas Chapter Events
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2024/01/Dakotas-Chapter_PPT-Title-Slide.jpg
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261027
DTEND;VALUE=DATE:20261028
DTSTAMP:20251222T210513Z
CREATED:20251222T210424Z
LAST-MODIFIED:20251222T210513Z
UID:10004534-1793059200-1793145599@www.fshdsociety.org
SUMMARY:FSHD Straight Talk with Tim Hollenback
DESCRIPTION:On the second and fourth Tuesday of every month\, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich\, full lives and diving into their experiences with FSHD. \nYou can find new episodes on YouTube and your favorite podcast app. Subscribe to make sure you never miss an episode!
URL:https://www.fshdsociety.org/event/straight-talk-264/2026-10-27/
LOCATION:FL
CATEGORIES:FSHD Radio
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2024/12/Straight-Talk-Closing-Image.jpg
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261027T180000
DTEND;TZID=America/New_York:20261027T190000
DTSTAMP:20260917T155712Z
CREATED:20260305T215030Z
LAST-MODIFIED:20260917T155712Z
UID:10004633-1793124000-1793127600@www.fshdsociety.org
SUMMARY:Virginia Chapter Meeting
DESCRIPTION:You’re invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect\, share experiences\, and stay informed on the latest news\, research\, and resources from the FSHD community. \nWhether you’re looking to share your story\, hear from others\, or just find a place where you belong\, we welcome you to join us. Let’s support each other as we navigate life with FSHD together. \nRegister Now
URL:https://www.fshdsociety.org/event/virginia-chapter-meeting-7/
LOCATION:Zoom Virtual Meeting\, United States
CATEGORIES:Virginia Chapter Events
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2024/01/Virginia-Chapter_PPT-Title-Slide.jpg
ORGANIZER;CN="Virginia Chapter":MAILTO:virginiachapter@fshdsociety.org
GEO:39.011902;-98.4842465
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261027T200000
DTEND;TZID=America/New_York:20261027T210000
DTSTAMP:20260916T211344Z
CREATED:20260916T211344Z
LAST-MODIFIED:20260916T211344Z
UID:10004766-1793131200-1793134800@www.fshdsociety.org
SUMMARY:CarePartner Hour - October 2026
DESCRIPTION:Oct 27\, 2026 \n8:00 PM ET | 7pm CT | 6pm MT | 5pm PT \n\nThis meeting is for those providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences\, challenges\, and helpful tips with other caregivers. This month’s meeting will be led by Kim Lunn. \nRegister Now
URL:https://www.fshdsociety.org/event/carepartner-hour-october-2026/
LOCATION:Zoom Virtual Meeting\, United States
CATEGORIES:CarePartner Hour
ATTACH;FMTTYPE=image/png:https://www.fshdsociety.org/wp-content/uploads/2025/05/CarePartner-Hour-header.png
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
GEO:39.011902;-98.4842465
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261031T130000
DTEND;TZID=America/New_York:20261031T140000
DTSTAMP:20260916T211601Z
CREATED:20260916T211601Z
LAST-MODIFIED:20260916T211601Z
UID:10004767-1793451600-1793455200@www.fshdsociety.org
SUMMARY:Weekend Wellness Hour - October 2026
DESCRIPTION:Oct 31\, 2026\n1:00 PM ET | 12pm CT | 11am MT | 10am PT \n\nJoin us for our next Weekend Wellness Hour\, an open forum gathering designed for members of the international FSHD community who are available on the last Saturday of most months. This welcoming space brings together individuals at every stage of the FSHD journey\, from newly diagnosed to long-experienced community members\, for meaningful conversation\, shared questions\, practical suggestions\, and peer support. Topics unfold naturally during the hour\, and we’ll also share updates on international FSHD events\, resources\, videos\, and articles. \nRegister Now
URL:https://www.fshdsociety.org/event/weekend-wellness-oct26/
LOCATION:Zoom Virtual Meeting\, United States
CATEGORIES:Wellness Hour
ATTACH;FMTTYPE=image/png:https://www.fshdsociety.org/wp-content/uploads/2025/05/Wellness-Hour-header.png
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
GEO:39.011902;-98.4842465
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261105T130000
DTEND;TZID=America/New_York:20261105T140000
DTSTAMP:20261008T203023Z
CREATED:20260805T222030Z
LAST-MODIFIED:20261008T203023Z
UID:10004740-1793883600-1793887200@www.fshdsociety.org
SUMMARY:FSHD University: Autonomy in Driving: Maintaining & Expanding Independence
DESCRIPTION:Thursday\, November 5 at 1:00 pm ET \n\nPresenter: Don Burke\, Russell Lai\, Jeff Johnston \nAutonomous driving technology is no longer a vision of the future—it’s here\, and it’s rapidly changing how people think about mobility and independence. But what can this technology actually do\, and what does this technology mean for individuals living with FSHD? \nJoin long-time FSHD advocate and volunteer Don Burke\, who is also well known in the Tesla community as an experienced Full Self-Driving (FSD) beta tester and road-trip adventurer\, for an engaging discussion on how autonomous driving technology is transforming mobility and independence. Drawing from his firsthand experiences with Tesla and insights into other autonomous platforms such as Waymo\, Don will explore the opportunities and limitations of today’s self-driving technology\, discuss who may benefit most\, and examine practical considerations\, including electric vehicles\, affordability\, and why now is the right time for the FSHD community to become familiar with these rapidly evolving innovations. \nWhether you’re curious about self-driving vehicles\, considering an electric vehicle\, or simply interested in how technology is reshaping independence for people with disabilities\, this webinar will provide valuable insights and plenty of time for audience questions. \nRegister Now
URL:https://www.fshdsociety.org/event/fshd-university-autonomy-in-driving-maintaining-expanding-independence/
LOCATION:Zoom Web Conference\, United States
CATEGORIES:FSHD University
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2025/06/FSHD-U-Calendar-Cover-Logo-Only.jpg
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
GEO:39.0997265;-94.5785667
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20261109T163000
DTEND;TZID=America/Denver:20261109T183000
DTSTAMP:20260929T205516Z
CREATED:20260929T205142Z
LAST-MODIFIED:20260929T205516Z
UID:10004772-1794241800-1794249000@www.fshdsociety.org
SUMMARY:Colorado/New Mexico Chapter Gathering
DESCRIPTION:4:30pm – 6:30pm MT\nLiving The Dream Brewing 9150 Commerce Center Cir #300\, Highlands Ranch\, CO 80129 \n\nJoin us for an evening at the Living the Dream brewery to enjoy some fresh beer and discuss FSHD news. Our own Jeff Johnston will be sharing his thoughts on his new therapy pool and there will be plenty of open discussion on any topic that you would like to bring up. \n~ Kurt \nRegister Now
URL:https://www.fshdsociety.org/event/co-nm-11-9-26/
LOCATION:Living The Dream Brewing 9150 Commerce Center Cir #300\, Highlands Ranch\, CO 80129\, Living The Dream Brewing 9150 Commerce Center Cir #300\,\, Highlands Ranch\, CO\, 80129\, United States
CATEGORIES:Colorado Chapter Events,New Mexico Chapter Events
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2024/01/Colorado_New-Mexico-Chapter_PPT-Title-Slide.jpg
ORGANIZER;CN="Colorado Chapter":MAILTO:coloradochapter@fshdsociety.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261110
DTEND;VALUE=DATE:20261111
DTSTAMP:20251222T210641Z
CREATED:20251222T210316Z
LAST-MODIFIED:20251222T210641Z
UID:10004523-1794268800-1794355199@www.fshdsociety.org
SUMMARY:FSHD Straight Talk with Tim Hollenback
DESCRIPTION:On the second and fourth Tuesday of every month\, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich\, full lives and diving into their experiences with FSHD. \nYou can find new episodes on YouTube and your favorite podcast app. Subscribe to make sure you never miss an episode!
URL:https://www.fshdsociety.org/event/straight-talk-262/2026-11-10/
LOCATION:FL
CATEGORIES:FSHD Radio
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2024/12/Straight-Talk-Closing-Image.jpg
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20261114T083000
DTEND;TZID=America/Denver:20261114T103000
DTSTAMP:20260929T205459Z
CREATED:20260929T205352Z
LAST-MODIFIED:20260929T205459Z
UID:10004773-1794645000-1794652200@www.fshdsociety.org
SUMMARY:Colorado/New Mexico Chapter Gathering
DESCRIPTION:8:30 – 10:30am MT\nVellichor Coffee Roasters 720 Golden Ridge Rd Ste D\, Golden\, CO 80401 \n\nJoin us for an in-person chapter gathering – this time over coffee. There will be no formal presentation\, but we will be discussing clinical trials and what advancements are being made as well as potential strategies to get enrolled when a study opens up. There will be plenty of open discussion around any FSHD topic that feel important to you. \n~Kurt \nRegister Now
URL:https://www.fshdsociety.org/event/co-nm-11-14-26/
LOCATION:Vellichor Coffee Roasters 720 Golden Ridge Rd Ste D\, Golden\, CO 80401\, Vellichor Coffee Roasters 720 Golden Ridge Rd Ste D\, Golden\, CO\, 80401\, United States
CATEGORIES:Colorado Chapter Events,New Mexico Chapter Events
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2024/01/Colorado_New-Mexico-Chapter_PPT-Title-Slide.jpg
ORGANIZER;CN="Colorado Chapter":MAILTO:coloradochapter@fshdsociety.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261115T140000
DTEND;TZID=America/New_York:20261115T163000
DTSTAMP:20260624T175527Z
CREATED:20260624T175527Z
LAST-MODIFIED:20260624T175527Z
UID:10004718-1794751200-1794760200@www.fshdsociety.org
SUMMARY:Michigan Chapter In-Person Gathering
DESCRIPTION:2:00-4:30pm ET\, Location TBD \n\nBefore the busy holiday season arrives\, we’d love to spend some time together connecting\, learning\, and engaging with fellow members of the Michigan FSHD community. \nWe’re planning an in-person Michigan Chapter meeting at a centrally located venue (to be announced soon) and hope you’ll join us for refreshments\, light appetizers\, and great conversation. This will be a wonderful opportunity to catch up with old friends\, meet new faces\, share experiences\, and strengthen our community. \nPlease mark your calendars now and plan to attend. We know schedules fill up quickly this time of year\, and we’d love to see as many people as possible there. \nAnd for all the Lions fans out there—don’t worry! The Lions play in Germany at 9:30 a.m.\, so you’ll be able to check that off your list before joining us. 😊 \nMore details\, including the venue and RSVP information\, will be coming soon. We can’t wait to gather together and celebrate the strength of our Michigan FSHD community. \nWe hope to see you there! \nRegister Now \n 
URL:https://www.fshdsociety.org/event/11-15-26-michigan/
LOCATION:FL
CATEGORIES:Michigan Chapter Events
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2024/01/Michigan-Chapter_PPT-Title-Slide.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261119T130000
DTEND;TZID=America/New_York:20261119T140000
DTSTAMP:20261001T192445Z
CREATED:20260810T221158Z
LAST-MODIFIED:20261001T192445Z
UID:10004742-1795093200-1795096800@www.fshdsociety.org
SUMMARY:FSHD University: Managing FSHD Without Medication
DESCRIPTION:Thursday\, November 19 at 1:00 pm ET \n\nPresenter: Enza Leone\, PhD\, University College London Hospitals NHS Foundation Trust  \nLiving well with FSHD involves much more than medication—it’s about adopting practical strategies that help maintain function\, independence\, and quality of life. In this webinar\, Dr. Enza Leone\, research physiotherapist at the Queen Square Centre for Neuromuscular Diseases and University College London Hospitals\, will share evidence-based recommendations developed in partnership with people living with FSHD\, caregivers\, and clinical experts. Participants will learn the “10 Top Tips” for non-pharmacological management\, including staying active\, exercising safely\, managing pain and fatigue\, and understanding considerations around shoulder surgery. Join us for practical guidance and actionable strategies that can help you navigate everyday life with FSHD and make informed decisions alongside your healthcare team. \nRegister Now
URL:https://www.fshdsociety.org/event/fshd-university-managing-fshd-without-medication/
LOCATION:Zoom Web Conference\, United States
CATEGORIES:FSHD University
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2025/06/FSHD-U-Calendar-Cover-Logo-Only.jpg
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
GEO:39.0997265;-94.5785667
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261119T170000
DTEND;TZID=America/Chicago:20261119T170000
DTSTAMP:20261006T210752Z
CREATED:20261006T210752Z
LAST-MODIFIED:20261006T210752Z
UID:10004775-1795107600-1795107600@www.fshdsociety.org
SUMMARY:Indiana Chapter Virtual Meeting
DESCRIPTION:Thurs\, Nov 19\, 2026 | 6pm ET/5pm CT \n\nJoin us for our “Third Thursday” chapter meeting! \nRegister Now
URL:https://www.fshdsociety.org/event/indy-11-19/
LOCATION:Zoom Virtual Meeting\, United States
CATEGORIES:Indiana Chapter Events
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2026/10/Indiana-Chapter_PPT-Title-Slide.jpg
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
GEO:39.011902;-98.4842465
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261124
DTEND;VALUE=DATE:20261125
DTSTAMP:20251222T210513Z
CREATED:20251222T210424Z
LAST-MODIFIED:20251222T210513Z
UID:10004535-1795478400-1795564799@www.fshdsociety.org
SUMMARY:FSHD Straight Talk with Tim Hollenback
DESCRIPTION:On the second and fourth Tuesday of every month\, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich\, full lives and diving into their experiences with FSHD. \nYou can find new episodes on YouTube and your favorite podcast app. Subscribe to make sure you never miss an episode!
URL:https://www.fshdsociety.org/event/straight-talk-264/2026-11-24/
LOCATION:FL
CATEGORIES:FSHD Radio
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2024/12/Straight-Talk-Closing-Image.jpg
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261124T180000
DTEND;TZID=America/New_York:20261124T190000
DTSTAMP:20260305T221534Z
CREATED:20260305T221534Z
LAST-MODIFIED:20260305T221534Z
UID:10004636-1795543200-1795546800@www.fshdsociety.org
SUMMARY:Virginia Chapter Meeting
DESCRIPTION:You’re invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect\, share experiences\, and stay informed on the latest news\, research\, and resources from the FSHD community. \nWhether you’re looking to share your story\, hear from others\, or just find a place where you belong\, we welcome you to join us. Let’s support each other as we navigate life with FSHD together. \nRegister Now
URL:https://www.fshdsociety.org/event/virginia-chapter-meeting-9/
LOCATION:Zoom Virtual Meeting\, United States
CATEGORIES:Virginia Chapter Events
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2024/01/Virginia-Chapter_PPT-Title-Slide.jpg
ORGANIZER;CN="Virginia Chapter":MAILTO:virginiachapter@fshdsociety.org
GEO:39.011902;-98.4842465
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261207T200000
DTEND;TZID=America/New_York:20261207T210000
DTSTAMP:20260710T144616Z
CREATED:20251222T205402Z
LAST-MODIFIED:20260710T144616Z
UID:10004725-1796673600-1796677200@www.fshdsociety.org
SUMMARY:Young Adults: Physical Therapy for Young Adults with FSHD
DESCRIPTION:8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT \n\nJoin us to speak with a physical therapist whose patient has benefited from a PT program. \nRegister \n\nNEW DATE AND TIME: Third Monday of every OTHER month. We will meet in February\, April\, June\, August\, October\, December in 2026. \nFSHD Young Adults is a social and support group focused on encouraging and empowering young adults impacted by FSHD. We created this space specifically for younger FSHDers to connect\, collaborate\, and provide networking opportunities. Whether you’re just graduating\, starting a new position\, or already on a career track\, the FSHD Young Professionals group will help you develop a valuable network of friends facing similar challenges. \nTo contact us directly\, please email: youngprofessionals@fshdsociety.org.
URL:https://www.fshdsociety.org/event/young-adults-2026/2026-12-07/
LOCATION:Zoom Virtual Meeting\, United States
CATEGORIES:Young Adults
ATTACH;FMTTYPE=image/png:https://www.fshdsociety.org/wp-content/uploads/2025/05/Young-Adults-header.png
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
GEO:39.011902;-98.4842465
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261208
DTEND;VALUE=DATE:20261209
DTSTAMP:20251222T210641Z
CREATED:20251222T210316Z
LAST-MODIFIED:20251222T210641Z
UID:10004524-1796688000-1796774399@www.fshdsociety.org
SUMMARY:FSHD Straight Talk with Tim Hollenback
DESCRIPTION:On the second and fourth Tuesday of every month\, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich\, full lives and diving into their experiences with FSHD. \nYou can find new episodes on YouTube and your favorite podcast app. Subscribe to make sure you never miss an episode!
URL:https://www.fshdsociety.org/event/straight-talk-262/2026-12-08/
LOCATION:FL
CATEGORIES:FSHD Radio
ATTACH;FMTTYPE=image/jpeg:https://www.fshdsociety.org/wp-content/uploads/2024/12/Straight-Talk-Closing-Image.jpg
ORGANIZER;CN="FSHD Society":MAILTO:fshdmeetings@fshdsociety.org
END:VEVENT
END:VCALENDAR