Rescheduled to Oct. 10 due to weather! 2026 Long Island Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, […]
2026 North Texas Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
2026 Atlanta Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
October 14, 2026 | 6pm ET/5pm CT The Understanding and Practice of Emotional Well-Being We will consider the meaning of well-being, how we define it personally, and ways we can enhance it in our daily lives. Grounded in shared human experience, we recognize that emotional well-being impacts everyone – regardless of their connection to FSHD. […]
October 15, 2026 | 6pm MT/5pm PT The Understanding and Practice of Emotional Well-Being We will consider the meaning of well-being, how we define it personally, and ways we can enhance it in our daily lives. Grounded in shared human experience, we recognize that emotional well-being impacts everyone – regardless of their connection to FSHD. […]
2026 Columbus Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
2026 Drum & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media and […]
2:00-3:00pm CT Bethany Retirement Living - 4255 30th Ave S, Fargo, ND 58104 Join the Dakotas Chapter for our next in-person meeting! We'll have an opportunity to connect with each other and give a recap of our recent Walk & Roll. Register Now
You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]
4:30pm - 6:30pm MT Living The Dream Brewing 9150 Commerce Center Cir #300, Highlands Ranch, CO 80129 Join us for an evening at the Living the Dream brewery to enjoy some fresh beer and discuss FSHD news. Our own Jeff Johnston will be sharing his thoughts on his new therapy pool and there will be […]
8:30 - 10:30am MT Vellichor Coffee Roasters 720 Golden Ridge Rd Ste D, Golden, CO 80401 Join us for an in-person chapter gathering - this time over coffee. There will be no formal presentation, but we will be discussing clinical trials and what advancements are being made as well as potential strategies to get enrolled […]
2:00-4:30pm ET, Location TBD Before the busy holiday season arrives, we'd love to spend some time together connecting, learning, and engaging with fellow members of the Michigan FSHD community. We're planning an in-person Michigan Chapter meeting at a centrally located venue (to be announced soon) and hope you'll join us for refreshments, light appetizers, and […]
You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]
English English 
العربية
Español de México
Français du Canada
简体中文
