All Chapters

Name: Virginia Chapter Meeting
Start: 2026-11-24T18:00:00-05:00
End: 2026-11-24T19:00:00-05:00
Location: Zoom Virtual Meeting

April 2026
Multi-Chapter Meeting: Eastern & Central Zones

Featured Apr 14 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings

Zoom Virtual Meeting , United States

We’re excited to invite you to our first Multi-Chapter Meeting of 2026 - a virtual event that brings together several FSHD chapters (based on time zone) for updates and peer connection. These meetings are designed to strengthen our chapter network and keep our community informed and connected. April's topic: "Understanding Gene Therapy and AAV technology […]
Multi-Chapter Meeting: Mountain & Pacific Time Zones

Featured Apr 15 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings

Zoom Virtual Meeting , United States

We’re excited to invite you to our first Multi-Chapter Meeting of 2026 - a virtual event that brings together several FSHD chapters (based on time zone) for updates and peer connection. These meetings are designed to strengthen our chapter network and keep our community informed and connected. April's topic: "Understanding Gene Therapy and AAV technology […]
Dakotas Chapter Meeting

Apr 19 @ 6:00 pm - 7:00 pm

3788 55th Ave S, Fargo, ND 58104 3788 55th Ave S., Fargo, ND, United States

Join the Dakotas Chapter at our next in-person meeting to catch up with one another and provide support as we navigate life with FSHD. Address: <p data-pm-slice="1 1 Register Now
New England Chapter In-Person Meeting

Apr 25 @ 12:00 pm - 2:00 pm 2026 Chapter Meetings

Come join us for an informal gathering to meet up with other FSHD New Englanders. This is a great opportunity to connect with our local community while enjoying a casual lunch. The restaurant is handicap accessible and an easy on-off from the highway. Reservations are required no later than April 22. Hope to see you […]
Virginia Chapter Meeting

Apr 28 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings

Zoom Virtual Meeting , United States

You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]
May 2026
Virginia Chapter Meeting

May 26 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings

Zoom Virtual Meeting , United States

You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]
FSHD 360 Québec

Featured May 30 @ 10:00 am - 3:30 pm 2026 FSHD 360s

Hotel Quartier DIX30 6500 Boul. de Rome, Brossard, QC, Canada, J4Y 0B6 Hotel Quartier DIX30 6500 Boul. de Rome, Brossard, QC, Canada

Saturday, May 30, 2026 Horaire de la conférence : 10h00 à 15h30 | Program runs from 10:00 am - 3:30 pm Lieu | Location: Hôtel Alt Quartier DIX30 | Alt Hotel Quartier DIX30 6500 Boul. de Rome, Brossard, QC, Canada, J4Y 0B6 2026 FSHD 360 Quebec Registrations 2026 FSHD 360 Quebec Info Page À propos […]
June 2026
2026 FSHD Connect Conference

Featured Jun 26 - Jun 28

The Future in Motion: Empowerment, Connection, and Care for Life with FSHD Uniting patients, families, and experts to equip, connect and prepare for what lies ahead. June 26–28, 2026 Hyatt Regency O’Hare Chicago Register Now Join us in Rosemont, IL (the Greater Chicago area) for the 2026 FSHD Connect Conference—our biennial global gathering dedicated to […]
August 2026
Western PA – 5th Annual Family Picnic

Aug 1 @ 12:00 pm - 3:00 pm 2026 Chapter Meetings

Adams Township Community Park, 698 Valencia Rd., Mars, PA 16046 Valencia Road, Mars, PA, United States

5th Annual Family Picnic August 1, 2026 | 12:00-3:00pm ET Adams Township Community Park, Township Pavilion 698 Valencia Rd., Mars, PA 16046 Please join us once again for this fun, in-person event where we can be in community and enjoy time together. Please RSVP so that we know how many people to expect! RSVP Here
Virginia Chapter Meeting

Aug 25 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings

Zoom Virtual Meeting , United States

You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]
September 2026
Alberta Walk & Roll to Cure FSHD 2026

Sep 12 2026 Walk & Roll to Cure FSHD

2026 Alberta Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
Chicagoland Walk & Roll to Cure FSHD 2026

Sep 12 2026 Walk & Roll to Cure FSHD

2026 Chicagoland Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
Colorado Walk & Roll to Cure FSHD 2026

Sep 13 2026 Walk & Roll to Cure FSHD

2026 Colorado Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
Pacific North West Sips & Smores for Smiles 2026

Sep 13 2026 Walk & Roll to Cure FSHD

Pacific Northwest Sips & Smores for Smiles Register for the Pacific Northwest Sips & Smores and support our annual FSHD fundraising campaign. Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join your online fundraising efforts. Then we will celebrate the Pacific Northwest together with sips and s’mores! Register for Sips & […]
Intermountain Walk & Roll to Cure FSHD 2026 (Salt Lake City, UT)

Sep 19 2026 Walk & Roll to Cure FSHD

2026 Intermoutain (Utah) Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
Ontario Walk & Roll to Cure FSHD 2026

Sep 19 2026 Walk & Roll to Cure FSHD

2026 Ontario Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
Mid-Atlantic Walk & Roll to Cure FSHD 2026

Sep 20 2026 Walk & Roll to Cure FSHD

2026 Mid-Atlantic Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
San Diego Walk & Roll to Cure FSHD 2026

Sep 20 2026 Walk & Roll to Cure FSHD

2026 San Diego Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
Virginia Chapter Meeting

Sep 22 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings

Zoom Virtual Meeting , United States

You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]
Bay Area Walk & Roll to Cure FSHD 2026

Sep 26 2026 Walk & Roll to Cure FSHD

2026 Bay Area Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
Long Island Walk & Roll to Cure FSHD 2026

Sep 26 2026 Walk & Roll to Cure FSHD

2026 Long Island Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
St. Louis Walk & Roll to Cure FSHD 2026

Sep 26 2026 Walk & Roll to Cure FSHD

2026 St. Louis Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
New England Walk & Roll to Cure FSHD 2026

Sep 27 2026 Walk & Roll to Cure FSHD

2026 New England Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
New Jersey Shore Walk & Roll to Cure FSHD 2026

Sep 27 2026 Walk & Roll to Cure FSHD

2026 New Jersey Shore Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on […]
Sacramento Walk & Roll to Cure FSHD 2026

Sep 27 2026 Walk & Roll to Cure FSHD

2026 Sacramento Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
October 2026
North Carolina Walk & Roll to Cure FSHD 2026

Oct 3 2026 Walk & Roll to Cure FSHD

2026 North Carolina Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
Florida (Northeast) Walk & Roll to Cure FSHD 2026

Oct 3 2026 Walk & Roll to Cure FSHD

2026 NE Florida Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
Los Angeles Walk & Roll to Cure FSHD 2026

Oct 4 2026 Walk & Roll to Cure FSHD

2026 Los Angeles Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]
Virginia Walk & Roll to Cure FSHD 2026

Oct 4 2026 Walk & Roll to Cure FSHD

2026 Virginia Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
Atlanta Walk & Roll to Cure FSHD 2026

Oct 11 2026 Walk & Roll to Cure FSHD

2026 Atlanta Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
Columbus Walk & Roll to Cure FSHD 2026

Oct 24 2026 Walk & Roll to Cure FSHD

2026 Columbus Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]
Drum & Roll to Cure FSHD 2026

Oct 25 2026 Walk & Roll to Cure FSHD

2026 Drum & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media and […]
Virginia Chapter Meeting

Oct 27 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings

Zoom Virtual Meeting , United States

You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]
November 2026
Virginia Chapter Meeting

Nov 24 @ 6:00 pm - 7:00 pm 2026 Chapter Meetings

Zoom Virtual Meeting , United States

You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]

April 2026

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October 2026

November 2026