Living Spiritually

Living Spiritually with FSHD is a Gathering Place group that offers a welcoming space for individuals exploring the connection between faith and life with FSHD. Whether your spiritual journey has been shaped by your diagnosis or your beliefs have influenced how you navigate FSHD, this group invites open conversation, reflection, and support. All beliefs are welcome, […]

7:00pm ET | 6:00pm CT | 5:00pm MT | 4:00pm PT Giving and Receiving Support with Purpose Join us for our next Living Spiritually with FSHD Gathering as we explore how helping others—and allowing others to help us—can bring meaning, joy, and connection, even as we navigate our own challenges. Together, we’ll reflect on ways […]

Join us for our next Living Spiritually with FSHD Gathering as we reflect on scripture passages, Bible teachings, and other wisdom literature that have inspired and strengthened us along our faith journeys—especially in the midst of living with FSHD. Together, we will share the words that have brought comfort, hope, resilience, and perspective during times […]

Living with FSHD can make life feel unpredictable and, at times, beyond our control. Together, we’ll be reminded that nothing about our diagnosis surprises God. His sovereignty is not diminished by our weakness. In Him, we can find steady ground even when our bodies feel uncertain. Come ready to reflect, share, and be strengthened by […]

May 5, 2026 7:00 PM ET/6:00 PM CT/5:00 PM MT/4:00 PM PT Join us for a meaningful conversation centered on the prayer “Empty me. Fill me. Use me.” as we encourage one another and explore how God is working in and through us, even in the midst of FSHD. Register Now Living Spiritually with FSHD […]

July 7th, 2026 - 7pm ET Dealing with Hard Times: Sharing and Holding on to Faith Living with FSHD often brings physical challenges, emotional fatigue, uncertainty about the future, and moments of grief. Scripture shows us that God does not expect us to pretend we are fine. He invites us to bring our whole selves—our […]