Oct 6, 2026 - 7pm ET | 6pm CT | 5pm MT | 4pm PT Anchoring in Purpose: Finding Meaning in Every Season of Life Navigating life with FSHD often […]
Oct 7, 2026 4:30pm ET | 3:30 CT | 2:30 MT | 1:30 PT Here to Help: Ways to Flourish (in good times and in bad) Join us at 4:30pm […]
Thursday, October 8 at 1:00 pm ET Presenter: Dr. Davi Mázala, PhD Join Dr. Davi Mázala, PhD, for an insightful webinar on exercise habits in FSHD. Dr. Mázala will explore […]
Oct 8, 2026 7:00pm ET | 6pm CT | 5pm MT | 4pm PT Topic: Chair Yoga This class, taught by Donna Russo, BA in Dance from Mercyhurst University and […]
Rescheduled to Oct. 10 due to weather! 2026 Long Island Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, […]
2026 North Texas Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone […]
2026 Atlanta Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who […]
Oct 12, 2026 4:30 PM ET | 3:30 CT | 2:30 MT | 1:30 PT Experiencing Loss and Grief Living with a progressive condition like FSHD often causes grief over […]
On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who […]
October 14, 2026 | 6pm ET/5pm CT The Understanding and Practice of Emotional Well-Being We will consider the meaning of well-being, how we define it personally, and ways we can […]
October 15, 2026 | 6pm MT/5pm PT The Understanding and Practice of Emotional Well-Being We will consider the meaning of well-being, how we define it personally, and ways we can […]
Oct 19, 2026 7:00 PM ET/6pm CT/5pm MT/4pm PT This class, taught by Donna Russo, BA in Dance from Mercyhurst University and certified in Chair Yoga, concentrates on breathing techniques […]
Oct 19, 2026 8pm ET | 7pm CT | 6pm MT | 5pm PT “What are you Into? Hobbies and Interests Hangout” Come join the Young Adults group for some […]
October 20, 2026 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT Guest: Jessica Duis - Vice President Clinical Development, Epicrispr Biotechnologies Register Now
Thursday, October 22 at 1:00 pm ET Presenter: Don Burke, Russell Lai, Jeff Johnston Autonomous driving technology is no longer a vision of the future—it's here, and it's rapidly changing […]
2026 Columbus Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who […]
2026 Drum & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers […]
2:00-3:00pm CT Bethany Retirement Living - 4255 30th Ave S, Fargo, ND 58104 Join the Dakotas Chapter for our next in-person meeting! We'll have an opportunity to connect with each […]
On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who […]
You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, […]
Oct 27, 2026 8:00 PM ET | 7pm CT | 6pm MT | 5pm PT This meeting is for those providing care to loved ones with FSHD. This virtual meeting […]
Oct 31, 2026 1:00 PM ET | 12pm CT | 11am MT | 10am PT Join us for our next Weekend Wellness Hour, an open forum gathering designed for members […]
4:30pm - 6:30pm MT Living The Dream Brewing 9150 Commerce Center Cir #300, Highlands Ranch, CO 80129 Join us for an evening at the Living the Dream brewery to enjoy […]
On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who […]
8:30 - 10:30am MT Vellichor Coffee Roasters 720 Golden Ridge Rd Ste D, Golden, CO 80401 Join us for an in-person chapter gathering - this time over coffee. There will […]
2:00-4:30pm ET, Location TBD Before the busy holiday season arrives, we'd love to spend some time together connecting, learning, and engaging with fellow members of the Michigan FSHD community. We're […]
Thursday, November 19 at 1:00 pm ET Presenter: Enza Leone, PhD, University College London Hospitals NHS Foundation Trust Living well with FSHD involves much more than medication—it’s about adopting practical […]
On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who […]
You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, […]
8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT Join us to speak with a physical therapist whose patient has benefited from a PT […]
On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who […]
Thursday, December 10 at 1:00 pm ET Presenter: Dr. Lauren Elman, MD, University of Pennsylvania The FSHD treatment landscape continues to evolve, with new therapies, clinical trials, and research approaches […]
On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who […]
Join us in Madrid, Spain for the 2027 International Research Congress on FSHD. More details to come, stay tuned! IRC Webpage
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