Now available. Read our 2025 Impact Report
On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD. You can find new episodes on YouTube and your favorite podcast app. Subscribe […]
No events on this day.
July 13th, 2026 4:30pm ET Support Systems This session will explore the various Support Systems that might be available to you. Come to the Wellness Hour to hear how you can be more supported in your FSHD Journey. You may find new ideas for possible support that you might not have thought about before! Led […]
No events on this day.
No events on this day.
Thursday, July 16th at 1:00 pm ET Presenter: Marisa Spain, Disability Rights Michigan Obtaining, maintaining, and advancing in employment can be a complex conversation when also living with FSHD. You might need expensive equipment like a wheelchair or accessible vehicle to be able to maintain access to work, or additional training or schooling to transition […]
No events on this day.
No events on this day.