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En souvenir de Dan Perez, cofondateur de la FSHD Society et moteur de la recherche et de la défense de la FSHD.
This just in from Doug Craig’s Facebook page!
We were walking down Market Street in Philly and came upon the Fox 29 station. We decided to pitch our story, and after trying unsuccessfully to enter the building were given a phone number to call. I told them what our campaign was about and was informed that it would be discussed at the upcoming editorial meeting, which was to take place in 30 minutes. While eating a delicious Philly Cheesesteak at Sonny’s on Market St. with some new friends (Eddie and Christan) we received a phone call from reporter JoAnn Pileggi who found our story interesting and wanted to meet with us. She met us near Sonny’s, accompanied by her camera man Martin (please send me your last name) and for the next couple of hours we talked and drove around the area for filming. We had a wonderful time. The story appeared on the ten-o’clock news and we filmed it with my iPhone.
Please see more recent interview of Doug and Gracie in Fox TV’s Washington DC studio:
http://www.fox5dc.com/good-day/21333954-video#.Vfwy0gk5bfM.facebook