New brochure on facioscapulohumeral muscular dystrophy

Publié le septembre 25th, 20159/25/15

We’re excited to announce the arrival of our new “About FSHD” brochure. Updated with the latest information on genetics, symptoms, diagnosis, patient care and more, this is your essential guide to understanding facioscapulohumeral muscular dystrophy, whether you have just been diagnosed or have lived with FSHD for years. The brochure includes a convenient medic alert card for you to carry in your wallet. Download our online version here.

Join the FSH Society (if you are new) or contact us, and we’ll mail you a copy!

Classé sous : Nouvelles de la société FSHD, Santé et médecine, Vivre avec la FSHD

7 réponses à “New brochure on facioscapulohumeral muscular dystrophy”

Miranda Collin dit :

octobre 7, 2015 à 6:37 pm

Hello – Could you please email or mail me a copy of the new brochure for FSH? Thank you.
- June Kinoshita dit :
  
  octobre 10, 2015 à 6:38 pm
  
  Send us your address and we’ll mail you a copy!
bob louden dit :

octobre 9, 2015 à 9:22 pm

No electronic version of the new “About FSHD” brochure??? Much easier to get the word out!
- June Kinoshita dit :
  
  octobre 10, 2015 à 6:38 pm
  
  You can download it on our Resource page, but the hardcopy version is worth having!
  
  https://www.fshdsociety.org/resources/
Abigail dit :

octobre 10, 2015 à 3:12 am

Please send new fsh brochure
- June Kinoshita dit :
  
  octobre 10, 2015 à 6:37 pm
  
  You can download it here: https://www.fshdsociety.org/resources/
  
  If you would like a hardcopy, please send us your postal address.
John Combs dit :

mai 22, 2016 à 2:53 pm

Thanks for all you do June!