Meet three remarkable individuals with FSH muscular dystrophy

Publié le janvier 16th, 20171/16/17

Meet Steven Blier, Sarah Geissler, and Chris Stenmon, three remarkable individuals with FSH muscular dystrophy who spoke about their dreams and personal challenges at the 2016 CureFSHD Gala. Interviewed by WBUR Morning Edition host Bob Oakes.

Classé sous : Vivre avec la FSHD

Une réponse à “Meet three remarkable individuals with FSH muscular dystrophy”

Raymond Huml dit :

janvier 31, 2017 à 8:04 am

I remain inspired by the entire FSHD community, but especially by those brave and courageous individuals with FSHD who are getting the word out about the disease.