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En souvenir de Dan Perez, cofondateur de la FSHD Society et moteur de la recherche et de la défense de la FSHD.
Join us for our annual San Francisco Concert and Conference, given in memory of Joyce Hakansson.
Don’t miss our FSHD Family Day Conference and Songs in the Key of Steven
Blier benefit concert on Saturday, July 15, at San Francisco’s Jewish Cultural Center. This is the Bay Area’s premier FSHD networking and advocacy event! Our conference provides an exceptional opportunity to hear from pre-eminent FSHD researchers including Peter Jones, PhD, and John Day, MD PhD, about clinical trials and cutting-edge research. There will also be a wealth of “news you can use” about physical therapy, respiratory health, FSHD care standards, orthotics, and navigating the legal and insurance systems.
Following the conference, stay on for our annual benefit concert, a magical evening showcasing the esteemed pianist and song meister Steven Blier, joined by rising stars Amanda Lynn Bottoms and Dimitri Katotakis. You will enjoy a delicious dinner and dazzling silent and live auctions, presided over by our master of ceremonies, Emmy Award winning radio & TV personality Liam Mayclem, best known as the host of EYE ON THE BAY on KPIX 5 and as “The Foodie Chap.”
Important deadlines:
Location:
Jewish Community Center of San Francisco
3200 California Street
San Francisco, CA 94118
Disclaimer:This is not a program of the JCCSF. The views expressed are those of the FSH Society and/or its affiliates and guests.