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En souvenir de Dan Perez, cofondateur de la FSHD Society et moteur de la recherche et de la défense de la FSHD.
If we deliver on our promise to have therapies to our families by 2025, it will be because of your donation today. With your continued support, this year we will:
The clock is ticking! This is why a group of visionary benefactors has pledged to match up to $100,000 in gifts made by May 31, 2019. By donating now, you will empower all of us to move forward with the urgency demanded.