World FSHD Day 2019 highlights

Journée mondiale de la FSHD was a HUGE Success!

Thank you to all of you who hosted events and participated! Here are a few highlights:

• • Les Tampa Chapter and George Pollock Raced Across America with Team FSHD Skyland Trail
  • The Atlanta Chapter lit up the King & Queen Buildings
  • The New England Chapter lit up the Zakim Bridge
  • Les Arizona et Utah Chapters had June 20th declared World FSHD Day in their state!
  • The Colorado Chapter hosted a meeting and lab tour at the University of Colorado Anschutz Medical Campus
  • Les Section de Saint-Louis hosted a picnic in the park
  • People from around the world joined the celebration! Just do a google search on #Journée mondiale de la FSH – it’s amazing.