The 2019 Year-End Report

This year, the FSHD Society – empowered by you – launched an aggressive plan to accelerate therapeutic development for FSHD. We brought together pharmaceutical companies, researchers, government agencies, and families in a working collaborative with the goal of delivering disease-modifying therapies by 2025.

Your support, activity, perseverance, and faithfulness has allowed us to be here, at this moment in history. Read about the bold steps we are taking to ensure we accomplish our goal by downloading our year-end report with information about our $500,000 matching gift challenge.

Donate before the end of 2019 to match your gift dollar for dollar!