Navigation “janvier, 2021 - FSHD Society”

COVID-19 Vaccine Q&A

This Q&A is based on the December 9 webinar with Rabi Tawil, MD, and Ghinwa Dumyati, MD, from the University of Rochester Medical Center, and the January 15 webinar hosted […]

MRI in FSH muscular dystrophy research

  This month’s FSHD University webinar (video above) provided an outstanding, nontechnical explanation of magnetic resonance technology (MRI) and how it is being applied in the Fulcrum Therapeutics clinical trial […]

Legacy planning made simpler

The Mattering Effect

“When one door of happiness closes, another opens. But often we look so long at the closed door that we don’t see the one which has been opened for us.” […]

Embrassez votre expérience

par Lori Brant Il y avait deux façons de marcher avec mon déambulateur dans le couloir de mon appartement. La première se déroulait en quelque sorte comme suit : “Je suis fatigué. [...]