Navigation “Décembre, 2022 - FSHD Society”

Teaching future doctors about FSHD

Publié le Décembre 19th, 202212/19/22

If we want to control the narrative, we need to tell our stories by Brian Jude Loiacono  I was formally diagnosed with FSHD in January 2019.  At that time I […]

Classé sous : Vivre avec la FSHD

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Promising findings from Avidity’s myotonic dystrophy trial

Publié le Décembre 14th, 202212/14/22

A major breakthrough for the field of RNA therapeutics Avidity Biosciences announced today that its investigational treatment for myotonic dystrophy type 1 (DM1), called AOC 1001, can be delivered into […]

Classé sous : Recherche sur la FSHD

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Des tremplins pour l'avenir

Publié le 11 décembre 202212/11/22

Everything we do propels us faster toward treatments and a cure We often speak of “filling potholes” and “overcoming obstacles” toward treatments and cures, but what the FSHD Society has […]

Classé sous : Recherche sur la FSHD

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Feeling Fit with low-impact seated exercises

Publié le Décembre 8th, 202212/8/22

Disclaimer: Not every exercise is appropriate or safe for every individual, so please use your best judgement and consult your health care provider. This week’s leader, known by her Instagram […]

Classé sous : Vivre avec la FSHD, PT et exercice

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Feeling Fit: Exercises for the neck and shoulders

Publié le Décembre 8th, 202212/8/22

Disclaimer: Not every exercise is appropriate or safe for every individual, so please use your best judgement and consult your health care provider. If anything hurts, stop! In the November […]

Classé sous : Général, Vivre avec la FSHD, PT et exercice

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