DIY & Endurance Fundraising is Gaining Momentum!

by Kim Shanley

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We’re only halfway through 2025, and it’s already been an incredible year for our DIY and endurance community at the FSHD Society. 

Kicking things off, Michael Ahlers conquered the legendary Triple Bypass ride, pedaling up and down the Rockies and raising almost $11,000 to help us power the path forward. On August 17th, we returned to the iconic Falmouth Road Race for the third year in a row, with six dedicated runners representing the FSHD Society at this historic Cape Cod event and raised almost $19,000! 

And that was just the summer! 

This fall, we’re thrilled to introduce two exciting new endurance events: 

The Twin Cities Marathon & 10-Mile Race takes place on October 5th.  This race is often called America’s Most Beautiful Urban Marathon, the Twin Cities Marathon took our runners through scenic neighborhoods, past historic landmarks, and across the mighty Mississippi River—all with vibrant fall colors as their backdrop.  

 

 

El Tour de Tucson – November 22, 2025
Now in its 42nd year, El Tour de Tucson is one of the premier bicycling events in the country, attracting nearly 10,000 cyclists annually. With multiple distances to choose from and a festive atmosphere like no other, it’s the perfect event for beginners and seasoned riders alike. Ride with us in the desert sun and help us fuel progress for every family impacted by FSHD. Learn more >>

Feeling inspired? Want to host your own event or take on a challenge that speaks to you? DIY fundraising is ready to explode—be creative, have fun, and make an impact. Whether it’s a backyard concert, pickleball tournament, yoga class, or lemonade stand, there’s something for everyone. 

To join any of these events or start your own, reach out to Kim.Shanley@fshdsociety.org. Let’s move together for a future without FSHD. 

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