Blog - FSHD Society

Mental Health Awareness

Publié le avril 28th, 20264/28/26

May is National Mental Health Awareness Month, a time to recognize that well-being includes both physical and emotional health. For individuals living with FSHD, mental health can be an important […]

Classé sous : Vivre avec la FSHD, Santé mentale

Yoga for FSHD

Publié le avril 23rd, 20264/23/26

Living with FSHD often means learning to build a tool kit of strategies that support both body and mind. For many people, yoga, meditation, and breathwork can be meaningful additions […]

Classé sous : Vivre avec la FSHD, PT et exercice

Tags : Exercice, Thérapie physique

Passing the Torch in the Bay Area: Thank You, Kent and Sue Drescher, and Welcome, Sam Feldman

Publié le avril 16th, 20264/16/26

The FSHD Society is deeply grateful to Kent and Sue Drescher for their years of dedicated service as leaders of the Bay Area Chapter. On Sunday, May 22, they officially […]

Classé sous : Nouvelles de la société FSHD

Tags : Histoires

The FSHD Society, SOLVE FSHD, and the FSHD CTRN Announce Launch of Industry Collaborative to Improve FSHD Clinical Trials

Publié le avril 8th, 20264/8/26

The FSHD Industry Collaborative is a first-of-its-kind, multi-stakeholder initiative designed to improve how FSHD clinical trials are designed, executed, and evaluated RANDOLPH, Mass. and VANCOUVER, BC, April 8, 2026 /PRNewswire/ […]

Classé sous : Recherche sur la FSHD, Nouvelles de la société FSHD

Tags : Recherche clinique, essais cliniques

The All-Canada Chapters National Meeting – February 5th, 2026

Publié le mars 31st, 20263/31/26

by Karen Camarta, Alberta Chapter Director The Canadian FSHD Community gathered on February 5th for the second Canada-Wide Chapter meeting, co-hosted by our Alberta and Quebec Chapters. The incredible turnout […]

Classé sous : Vivre avec la FSHD