What a New Study on FSHD and Mortality Means for Our Community
by Amanda Hill, Research & Care Programs Officer at the FSHD Society, and Ally Roets, Parent, Caregiver, CureFSHD for All Advocate and Parents’ Roundtable Leader Many of us in […]
by Amanda Hill, Research & Care Programs Officer at the FSHD Society, and Ally Roets, Parent, Caregiver, CureFSHD for All Advocate and Parents’ Roundtable Leader Many of us in […]
By Dr. Lucienne Ronco This is a question we often hear from FSHD patients. Human hormones, like estrogen, impact muscle health in general, not just in disease. In healthy muscle, […]
By Selina Lai, MS, Nutritionist In the past year there have been 2 investigative surveys of the lead content of protein powder supplements published by The Clean Label Project1 and […]
- Premier patient atteint de dystrophie musculaire facio-scapulo-humérale (FSHD) recevant des cellules progénitrices modifiées de la muqueuse ombilicale (UMPC) Restem-L - L'étude de phase 1/2a évaluera l'innocuité et l'efficacité préliminaire de [...]
Par Ranae Beeker, MSN, RN Écrit dans l'optique de la sensibilisation et de l'importance du respect. Nous comprenons que ce sujet n'intéresse pas tous les membres de notre communauté [...]