En souvenir de Dan Perez, cofondateur de la FSHD Society et moteur de la recherche et de la défense de la FSHD.
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Rédigé par Howard Chabner, vice-président du conseil d'administration, et partagé au nom de l'ensemble du conseil d'administration de la FSHD Society Le conseil d'administration de la FSHD Society est profondément attristé [...]
While his family and our community morns the loss, I want to honor the life of Dan Perez, a man whose vision, determination, and heart changed the course of FSHD […]
by Beth Johnston Earlier this month, we added the 4th Canadian Chapter to the roster of our growing FSHD Communities! The Quebec Chapter is led by father/son duo Sylvain and […]
By June Kinoshita As I step into a new chapter of my life, I find myself reflecting on the extraordinary 13-year journey I’ve had with the FSHD Society. What began […]
By June Kinoshita, FSHD Society It is with deep sadness and gratitude that the FSHD Society honors the memory of beloved community member and long-time volunteer, Ann Biggs-Williams, who passed away […]
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