En souvenir de Dan Perez, cofondateur de la FSHD Society et moteur de la recherche et de la défense de la FSHD.
Français du CanadaIn October, our FSHD University hosted a webinar that explored how smart home technologies can transform daily life for people living with facioscapulohumeral muscular dystrophy (FSHD). Presented by community members […]
By Ranae Beeker, MSN, RN Written within the lens of awareness and the importance of respect. We understand that this topic is not of value to all of our community […]
Christine’s father was diagnosed with FSHD in his late 40s. Four years later he was reliant on a cane and, within ten years, a wheelchair. When Christine herself was diagnosed […]
by Jenny Gast, National Director, Chapter Programs, FSHD Society What makes our chapter network so meaningful isn’t the size of the events, but the spirit within them. This summer, each […]
By Ranae Beeker My name is Ranae Beeker, and I am responsible for facilitating, running, and moderating the Women on Wellness (WOW) support group. Over the past five years, our […]
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