En souvenir de Dan Perez, cofondateur de la FSHD Society et moteur de la recherche et de la défense de la FSHD.
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By Ranae Beeker, MSN, RN Written within the lens of awareness and the importance of respect. We understand that this topic is not of value to all of our community […]
By Ranae Beeker My name is Ranae Beeker, and I am responsible for facilitating, running, and moderating the Women on Wellness (WOW) support group. Over the past five years, our […]
By Ashley Ferreira Many patients have never heard of a physiatrist, and when they do, they ask themselves, “What do they do?” There are many different healthcare professionals that are […]
This recent FSHD University webinar titled “Breathing with FSHD” features Dr. Joshua Benditt, a pulmonary and critical care expert at the University of Washington. He provides a comprehensive overview aimed […]
In case you missed it, the long-awaited and first-of-its-kind digital research and health platform, BetterLife FSHD, launched last fall. In our video below (scroll to the bottom of the page), […]
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