En souvenir de Dan Perez, cofondateur de la FSHD Society et moteur de la recherche et de la défense de la FSHD.
Français du Canada
By Leah Lee Originally posted to the Muscular Dystrophy Coalition Facebook Group on July 26, 2025. Loving someone with FSHD means learning to live in constant motion. Everything is always […]
…when I was first diagnosed with FSHD (infantile onset) by Archer Sverdrup, St. Louis, Missouri Progression is unpredictable. Sometimes you may go a year with only minor progression. Sometimes every […]
Friendships are built intentionally by Gregg Lichtenstein, Margate City, New Jersey The 1970s band Three Dog Night proclaimed that “One is the loneliest number that you’ll ever do.” For all […]
Here’s something to help you relax after the stress of the holidays. Our December 2023 meeting of the Feeling Fit group featured Qigong instruction by member Trish Kean. You […]
When we invited people in the community to offer “exercise hacks,” one of those who stepped forward was Rita Lynn. Following her FSHD diagnosis, she went through a period of […]
English English 
العربية
Español de México
Français du Canada
简体中文
