En souvenir de Dan Perez, cofondateur de la FSHD Society et moteur de la recherche et de la défense de la FSHD.
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By Angela Davis, Marquette, Michigan Do what you can, while you can. I always have had that mantra for my life. After being diagnosed with FSHD when I was 38 […]
by June Kinoshita, FSHD Society At a recent Feeling Fit Zoom gathering, Cheryl Clulow, who had logged in from her home in Cape Town, South Africa, mentioned that she has […]
To keep myself fit, ready, and aware of changes in my body by Frank Hanley, Bolivia, North Carolina This is an exciting time for us. The research, clinical trials, and […]
The Feeling Fit Zoom community hosts twice-monthly Zoom sessions about exercises tailored to the needs of individuals with FSHD. The group hosted recent discussions about the role of personal trainers […]
Our May Feeling Fit Zoom group featured Arielle Levy, a physical therapist from Re+Active Physical Therapy founded by Julie Hershberg (a legend in the FSHD community). Following the introductory information […]
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