Navigation dans les articles étiquetés “rare disease advocacy - FSHD Society”

How to organize a successful auction

Here’s our first “Fundraising Masterclass” webinar featuring Terry Colella, who shares the lessons she has learned from organizing her highly successful annual auction. Questions? Post them under comments below!

GE Chairman’s Award Benefits FSH Muscular Dystrophy Research

From PRWeb The $25,000 award to the Massachusetts-based FSH Society will fund scientific research grants focused on discovering and developing treatments for facioscapulohumeral muscular dystrophy. Lexington, MASS. (PRWEB) March 03, […]

Lives touched by FSH muscular dystrophy

Progress in 2013

After wrapping up what was a busy first month of 2014, we finally have a moment to look back on 2013 and acknowledge what a busy – and successful – […]

Publication de la première étude à haut débit de FSH sur la découverte de médicaments contre la dystrophie musculaire

Extrait du communiqué de presse de PRWeb, 6 février 2014. Dans le cadre d'une recherche financée par la FSH Society, une association de défense des patients, une équipe du Minnesota a identifié des médicaments qui bloquent les effets toxiques de [...]