Navigation dans les articles étiquetés “Patient Connect - FSHD Society”

My Boston Adventure: traveling solo with my wheelchair

Publié le mai 4th, 20175/4/17

Written by Trisha Lynn Sprayberry Las Vegas, Nevada My adventure began late Wednesday night, November 9, 2016. My fiancé, Erin, had dropped me off at the airport. With my suitcase […]

Classé sous : Vivre avec la FSHD

Tags : #CureFSHD, Cure FSHD Gala, IRC, Patient Connect

Lire la suite

What Would You Like to #AskTheResearcher?

Publié le octobre 25th, 201610/25/16

For the past 25 years, countless researchers have dedicated their time and energy striving to find a cure for FSHD. Thanks to the work of researchers like Dr. Jeffrey Statland, […]

Classé sous : Recherche sur la FSHD

Tags : #AskTheResearcher, FSH dystrophie musculaire, FSHD, Patient Connect, Les avancées de la recherche

Lire la suite