Early-Onset Parent Roundtable – Connect recap

20:00 PM ET | 19:00 PM CT | 18:00 PM MT | 17:00 PM PT

This year’s FSHD Connect, held on June 15-16, had activities and breakouts dedicated to pediatric and early-onset FSHD. Ally Roets and Debbie Eggleston will share what happened, what was learned, and discuss how our community will follow up.

Join us for our monthly Early-Onset Parent Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.

Nous aimerions connaître votre avis et votre participation. N'hésitez pas à nous rejoindre et à nous faire part de vos idées, de vos questions, de vos réponses, de vos conseils et de vos astuces.

Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. If you participated in one of our meetings in 2023, you are automatically a part of the group and do not need to register again. You may change your group membership at any time by emailing us at info@fshdsociety.org.

Ally Roets & Sam Ray
Directeurs de sections à début précoce

En savoir plus sur la Chapitre sur l'apparition précoce