- Vivre avec la FSHD
-
- S'impliquer
-
- Recherche et soins cliniques
- À propos de nous
- Actualités et médias
- Évènements
- Blog
- BetterLife
- Faire un don aujourd'hui
Design a shirt for the 2026 T-Shirt Design Contest. Submissions close Feb 28!

On the 4th Thursday of every month, join us for FSHD Radio: Hot off the Press. Every month we will bring you a short-form show that will bring you the latest and greatest from the FSHD Society, including research updates, upcoming events, and important developments to keep you updated on all things FSHD.
This month, our Hot off the Press guest is Amy Halseth, PhD, of Avidity Biosciences. Amy is the Executive Director of Clinical Development and serves as th
e Program Lead for the company’s FSHD program. Avidity Biosciences has announced its plans to launch FORTITUDE, a Phase 1 / 2 clinical trial, and Amy will be on the podcast to answer questions that were asked during last month’s webinar. We can’t wait to talk with Amy and get the latest details on this exciting trial!
Watch the video podcast premiere on the 4th Thursday of every month at 9:00 am CST, either on YouTube ou Facebook. Share your thoughts, or post questions in the comments section. You can also access the podcast on any streaming service.
Mark your calendar and invite your friends to a listening party! Chat with fellow viewers in the comments section. It’s a great community event! Whether you just need someone to talk to, are trying to solve a problem, or have ideas to share, we welcome your voice.