- Vivre avec la FSHD
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- S'impliquer
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- Recherche et soins cliniques
- À propos de nous
- Actualités et médias
- Évènements
- Blog
- BetterLife
- Faire un don aujourd'hui
Now available. Read our 2025 Impact Report

Wissahickon Valley Public Library Community Room – 650 Skippack Pike, Blue Bell PA 19422
***Option to attend virtually via Zoom (RSVP to receive the link)
We will gather to catch up, socialize, and discuss BetterLife – a new platform dedicated to both research and empowering those living with FSHD.
RSVP : https://go.fshdsociety.org/l/701273/2023-05-09/439tq1