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Now available. Read our 2025 Impact Report

We’re hosting an informal brunch for people with FSHD and their families. This is a space to ask questions and share resources with each other.
We also have some exciting chapter updates. We now have an Ontario Chapter Instagram account – find it at @fshdsociety.ontario on Instagram. Additionally, our 5th annual Walk & Roll to Cure FSHD was super successful and raised $84,200! To date, this event has raised $311,600 over 5 years!
Can’t wait to celebrate with you!
Thanks,
Carrie