Table ronde des parents

Table ronde des parents

20:00 PM ET | 19:00 PM CT | 18:00 PM MT | 17:00 PM PT

New Schedule: The Parents’ Roundtable will meet quarterly starting in 2026. We will meet in January, April, July, and October of 2026.

Join us for our Parents’ Roundtable on the 3rd Tuesday, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible, and to advocate for more research and clinical trials for children. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.

Nous aimerions connaître votre avis et votre participation. N'hésitez pas à nous rejoindre et à nous faire part de vos idées, de vos questions, de vos réponses, de vos conseils et de vos astuces.

Ally Roets & Sam Ray
Parents’ Roundtable Directors

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