Français du Canada
Français du Canada
English العربية Español de México 简体中文
  • Évènements
  • Blog
  • BetterLife
Société FSHD
  • Vivre avec la FSHD
        • Comprendre la FSHD
          • Diagnostic
          • FSHD à début précoce
          • Tests génétiques
          • Symptômes
          • Université FSHD
            • Santé physique
            • Bien-être
          • Glossaire de termes scientifiques
          • Bibliothèque des patients
          • Cause génétique
        • La prise en charge de la FSHD
          • BetterLife FSHD
          • Trouver des soins
          • Navigateur FSHD
          • Nouvellement diagnostiqué avec FSHD ?
          • Soins cliniques de la FSHD
          • Ressources complémentaires
            • Équipement adapté
            • Coordination des soins
            • Autosoins de l'aidant
            • Ressources financières/juridiques
            • Planification familiale
  • S'impliquer
        • Communautés
          • Antennes locales
          • Communautés en ligne
            • Lieu de rassemblement
            • Médias sociaux
          • Chapitre de la table ronde des parents
          • Alliance mondiale de la FSHD
        • Évènements
          • Marcher et rouler pour guérir la FSHD
          • Conférences régionales FSHD 360
          • Conférence FSHD Connect
          • Journée mondiale de la FSHD
        • Comment aider
          • Façons de donner
            • Collecte de fonds
            • Faire un don
          • Bénévole
        • Défense des intérêts
          • Défense des intérêts du gouvernement
          • Défense des intérêts de la FDA
            • Rapport sur la voix du patient
            • Mobilité du haut du corps
          • Défense des intérêts des payeurs
            • Coût réel de la FSHD
          • Partagez votre histoire de FSHD
  • Recherche et soins cliniques
        • Recherche et essais cliniques
          • Pipeline de développement de médicaments
          • Réseau de recherche sur les essais cliniques
          • Essais et études en cours
          • Formation aux essais cliniques
            • Essais cliniques 101
            • Les essais cliniques me conviennent-ils ?
            • Comment démarrer un essai clinique
            • Dépistage et consentement
            • À quoi s'attendre
            • Après un procès
          • Mises à jour de la recherche
        • Pour les chercheurs
          • Congrès international de la recherche
          • BetterLife - Portail de la recherche sur la FSHD
          • Demander une subvention
        • Pour les cliniciens
          • Formation continue
          • Masterclass FSHD
        • Accélérateur thérapeutique
          • Projet Mercure
          • Pôle mondial d'innovation
  • À propos de nous
        • À propos de l'association FSHD
          • L'histoire
          • Notre mission
          • Notre impact
            • Recherche que nous avons financée
          • Notre équipe
          • Nos partenaires
          • Finances
          • Centre des médias
            • Lignes directrices de la marque
  • Actualités et médias
        • Blog
          • Recherche sur la FSHD
          • Nouvelles de la société FSHD
          • Collecte de fonds et événements
          • Général
          • Vivre avec la FSHD
            • Santé et médecine
            • Santé mentale
            • PT et exercice
            • Conseils et astuces
          • Médias et relations publiques
        • Bibliothèque des médias
        • FSHD Straight Talk Podcast (en anglais)
        • Le magazine The FSHD Advocate
  • Évènements
  • Blog
  • BetterLife
  • Faire un don aujourd'hui
Faire un don Aujourd'hui
37 évènements trouvé.

Tous les chapitres

  1. Évènements
  2. Tous les chapitres

Évènements

Évènements Search and Views Navigation

Évènement Vues Navigation

  • Liste
  • Mois
  • Semaine
Aujourd'hui
  • juin 2026

  • Mer 10

    Canada Multi-Chapter Meeting with SOLVE FSHD

    En vedette Juin 10 @ 5:00 pm - 18:00 heures 2026 Réunions des sections
    Réunion virtuelle Zoom ,États-Unis

    June 10th, 2026 | 5:00-6:30pm PT Hosted by the British Columbia Chapter THIS IS A MEETING YOU WON'T WANT TO MISS! Eva Chin of SOLVE FSHD will be offering an update along with some exciting news for BC Chapter members! Via Zoom, Eva will get us all up to speed on the progress that was […]

  • Dim 14

    PNW Chapter Baseball Game & World FSHD Day Celebration

    Juin 14 @ 12:00 pm - 3:30 pm 2026 Réunions des sections
    Cheney Stadium, 2502 S Tyler St, Tacoma, WA 98405 Cheney Stadium 2502 S. Tyler St,Tacoma,WA,United States

    Sunday, June 14th, 2026 Join the Pacific Northwest Chapter on June 14th to watch the Tacoma Rainiers play against the Albuquerque Isotopes! Cheney Stadium, Tacoma - 2502 S Tyler St, Tacoma, WA 98405 12:00pm if you'd like to join us for a pre-game photo on the field. The game starts at 1:35pm and ends around […]

  • Mer 17

    Michigan Chapter Meeting

    Juin 17 @ 7:00 pm - 20:00 heures 2026 Réunions des sections
    Réunion virtuelle Zoom ,États-Unis

    Jun 17, 2026 at 7:00PM ET We are excited to gather virtually for our upcoming Michigan Chapter meeting and hope you can join us! During this meeting, we'll discuss what's happening across Michigan, share chapter updates, and connect with one another. We'll also talk about the upcoming FSHD Society Connect Conference taking place in late […]

  • Jeu 18

    Alberta Chapter In-Person Meeting for World FSHD Day

    Juin 18 @ 6:00 pm - 20:00 heures 2026 Réunions des sections
    National Westhills (180 Stewart Green SW, Calgary) 180 Steward Green SW,Calgary,AB,Canada

    June 18, 2026 | 6:00pm National Westhills (180 Stewart Green SW, Calgary) Chapter get-together to celebrate World FSHD Day (two days early). An opportunity to mix & mingle over dinner. Everyone is welcome! Register Now

  • Sam 20

    Greater Philly Area In-Person Chapter Meeting – World FSHD Day

    Juin 20 @ 10:00 am - 13:00 heures 2026 Réunions des sections
    Wissahickon Valley Public Library, Community Room 650 Skippack Pike - Blue Bell,Blue Bell,PA,United States

    Register Now

  • Sam 20

    Colorado/New Mexico Chapter Gathering for World FSHD Day

    Juin 20 @ 11:00 am - 13:00 heures 2026 Walk & Roll to Cure FSHD
    Great Lawn Park Picnic Site 2, 101 Yosemite St Denver CO 80230 Great Lawn Park Picnic Site 2, 101 Yosemite St,Denver,CO,United States

    June 20, 2026 from 11:00am-1:00pm Great Lawn Park Picnic Site 2, 101 Yosemite St Denver CO 80230 Join us for a picnic to celebrate World FSHD Day on June 20th! June 20 is World FSHD Day and we will be gathering as a Chapter to celebrate. We will meet at Lowry Great Lawn Park Picnic […]

  • Sam 20

    North Carolina Chapter World FSHD Day Baseball Game

    Juin 20 @ 6:00 pm - 21:00 heures 2026 Réunions des sections
    Hickory Crawdads Stadium 2500 Clement Blvd NW, Hickory, NC 28601 Hickory Crawdads Stadium 2500 Clement Blvd NW,Hickory,NC,United States

    6:00pm at L.P. Frans Stadium - 2500 Clement Blvd NW Hickory NC 28601 You are invited to join the North & South Carolina FSHD Chapters for an in-person gathering on World FSHD Day, June 20th, 2026, for a night of baseball as the Hickory Crawdads take on the Columbia Fireflies! The night will be hosted […]

  • Sam 20

    British Columbia Chapter World FSHD Day Event

    Juin 20 @ 7:30 pm - 10:30 pm 2026 Réunions des sections
    Mahoney & Sons Tavern 1055 Canada Pl #36,Vancouver,BC,Canada

    June 20 from 7:30-10:30pm PT Mahony's Pub. Vancouver Convention Centre West Building, Burrard Landing, 1055 Canada Pl #36, Vancouver, BC V6C 0C3 Come out for some food and beverages to help celebrate World FSHD Day right next to the Sails, which will be lit up in ORANGE to commemorate World FSHD Day. Lots of other […]

  • Sam 20

    Atlanta World FSHD Day Watch Party

    Juin 20 @ 8:00 pm - 10:00 heures 2026 Réunions des sections
    El Azteca Perimeter - 6115 Peachtree Dunwoody Road, Ste. 100, Sandy Springs GA 30328 El Azteca Perimeter - 6115 Peachtree Dunwoody Road, Ste. 100,Sandy Spring,GA,United States

    8:00pm ET at El Azteca Perimeter - 6115 Peachtree Dunwoody Road, Ste. 100, Sandy Springs GA 30328 Please join us once again to watch the King & Queen Buildings light up orange in honor of World FSHD Day! We are planning to meet up at El Azteca Perimeter, located at 6115 Peachtree Dunwoody Road, Ste. 100, […]

  • Mar 23

    Virginia Chapter Meeting

    Juin 23 @ 6:00 pm - 19:00 heures
    Réunion virtuelle Zoom ,États-Unis

    Jun 23, 2026 at 6pm ET You’re invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share […]

  • Ven 26

    2026 FSHD Connect Conference

    En vedette Juin 26 - Juin 28

    The Future in Motion: Empowerment, Connection, and Care for Life with FSHD  Uniting patients, families, and experts to equip, connect and prepare for what lies ahead. June 26–28, 2026 Hyatt Regency O’Hare Chicago Register Now Join us in Rosemont, IL (the Greater Chicago area) for the 2026 FSHD Connect Conference—our biennial global gathering dedicated to […]

  • août 2026

  • Sam 1

    Western PA – 5th Annual Family Picnic

    Août 1 @ 12:00 pm - 15:00 heures 2026 Réunions des sections
    Adams Township Community Park, 698 Valencia Rd., Mars, PA 16046 Valencia Road,Mars,PA,United States

    5th Annual Family Picnic August 1, 2026 | 12:00-3:00pm ET Adams Township Community Park, Township Pavilion 698 Valencia Rd., Mars, PA 16046 Please join us once again for this fun, in-person event where we can be in community and enjoy time together. Please RSVP so that we know how many people to expect! RSVP Here

  • Mar 25

    Virginia Chapter Meeting

    Août 25 @ 6:00 pm - 19:00 heures 2026 Réunions des sections
    Réunion virtuelle Zoom ,États-Unis

    You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]

  • septembre 2026

  • Sam 12

    Alberta Walk & Roll to Cure FSHD 2026

    Sep 12 2026 Walk & Roll to Cure FSHD

    2026 Alberta Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]

  • Sam 12

    Chicagoland Walk & Roll to Cure FSHD 2026

    Sep 12 2026 Walk & Roll to Cure FSHD

    2026 Chicagoland Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]

  • Dim 13

    Colorado Walk & Roll to Cure FSHD 2026

    Sep 13 2026 Walk & Roll to Cure FSHD

    2026 Colorado Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]

  • Dim 13

    Pacific North West Sips & Smores for Smiles 2026

    Sep 13 2026 Walk & Roll to Cure FSHD

    Pacific Northwest Sips & Smores for Smiles Register for the Pacific Northwest Sips & Smores and support our annual FSHD fundraising campaign. Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join your online fundraising efforts. Then we will celebrate the Pacific Northwest together with sips and s’mores! Register for Sips & […]

  • Sam 19

    Intermountain Walk & Roll to Cure FSHD 2026 (Salt Lake City, UT)

    Sep 19 2026 Walk & Roll to Cure FSHD

    2026 Intermoutain (Utah) Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]

  • Sam 19

    Ontario Walk & Roll to Cure FSHD 2026

    Sep 19 2026 Walk & Roll to Cure FSHD

    2026 Ontario Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]

  • Dim 20

    Mid-Atlantic Walk & Roll to Cure FSHD 2026

    Sep 20 2026 Walk & Roll to Cure FSHD

    2026 Mid-Atlantic Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]

  • Dim 20

    San Diego Walk & Roll to Cure FSHD 2026

    Sep 20 2026 Walk & Roll to Cure FSHD

    2026 San Diego Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]

  • Mar 22

    Virginia Chapter Meeting

    Sep 22 @ 6:00 pm - 19:00 heures 2026 Réunions des sections
    Réunion virtuelle Zoom ,États-Unis

    You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]

  • Sam 26

    Bay Area Walk & Roll to Cure FSHD 2026

    Sep 26 2026 Walk & Roll to Cure FSHD

    2026 Bay Area Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]

  • Sam 26

    Long Island Walk & Roll to Cure FSHD 2026

    Sep 26 2026 Walk & Roll to Cure FSHD

    2026 Long Island Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]

  • Sam 26

    St. Louis Walk & Roll to Cure FSHD 2026

    Sep 26 2026 Walk & Roll to Cure FSHD

    2026 St. Louis Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]

  • Dim 27

    New England Walk & Roll to Cure FSHD 2026

    Sep 27 2026 Walk & Roll to Cure FSHD

    2026 New England Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]

  • Dim 27

    New Jersey Shore Walk & Roll to Cure FSHD 2026

    Sep 27 2026 Walk & Roll to Cure FSHD

    2026 New Jersey Shore Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on […]

  • Dim 27

    Sacramento Walk & Roll to Cure FSHD 2026

    Sep 27 2026 Walk & Roll to Cure FSHD

    2026 Sacramento Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]

  • octobre 2026

  • Sam 3

    North Carolina Walk & Roll to Cure FSHD 2026

    Oct 3 2026 Walk & Roll to Cure FSHD

    2026 North Carolina Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]

  • Sam 3

    Florida (Northeast) Walk & Roll to Cure FSHD 2026

    Oct 3 2026 Walk & Roll to Cure FSHD

    2026 NE Florida Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]

  • Dim 4

    Los Angeles Walk & Roll to Cure FSHD 2026

    Oct 4 2026 Walk & Roll to Cure FSHD

    2026 Los Angeles Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social […]

  • Dim 4

    Virginia Walk & Roll to Cure FSHD 2026

    Oct 4 2026 Walk & Roll to Cure FSHD

    2026 Virginia Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]

  • Dim 11

    Atlanta Walk & Roll to Cure FSHD 2026

    Oct 11 2026 Walk & Roll to Cure FSHD

    2026 Atlanta Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]

  • Sam 24

    Columbus Walk & Roll to Cure FSHD 2026

    Oct 24 2026 Walk & Roll to Cure FSHD

    2026 Columbus Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media […]

  • Dim 25

    Drum & Roll to Cure FSHD 2026

    Oct 25 2026 Walk & Roll to Cure FSHD

    2026 Drum & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who registers will be given a free participant page and access to a state-of-the-art fundraising center. From there, you can share your story on social media and […]

  • Mar 27

    Virginia Chapter Meeting

    Oct 27 @ 6:00 pm - 19:00 heures 2026 Réunions des sections
    Réunion virtuelle Zoom ,États-Unis

    You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]

  • novembre 2026

  • Mar 24

    Virginia Chapter Meeting

    Nov 24 @ 6:00 pm - 19:00 heures 2026 Réunions des sections
    Réunion virtuelle Zoom ,États-Unis

    You're invited to our next FSHD Society Chapter Meeting – a supportive space to connect with others who understand your journey. This is a great opportunity to connect, share experiences, and stay informed on the latest news, research, and resources from the FSHD community. Whether you’re looking to share your story, hear from others, or […]

  • Évènements précédents
  • Aujourd'hui
  • Google Agenda
  • iCalendar
  • Outlook 365
  • Outlook Live
  • Exporter un fichier .ics
  • Exportez le fichier Outlook.ics

Rester informé

Inscrivez-vous pour recevoir des alertes par courriel et restez au courant des dernières nouvelles et mises à jour de la FSHD.

Ce champ est utilisé à des fins de validation et ne doit pas être modifié.
Nom(Obligatoire)
Société FSHD
75 North Main Street, Suite 1073
Randolph, MA 02368
(781) 301-6060
Dons : PO Box 411617 Boston, MA 02241-1617
Faire un don aujourd'hui
  • Vivre avec la FSHD
    • Glossaire de termes scientifiques
    • Comprendre la FSHD
    • La prise en charge de la FSHD
    • Recherche et essais cliniques
    • Rejoignez-nous
  • Défense des intérêts
    • Communautés
    • Évènements
    • Collecte de fonds
    • S'impliquer
  • Recherche
    • Accélérateur thérapeutique
    • Recherche et essais cliniques
    • Pour les cliniciens
    • Possibilités de subventions
  • Twitter
  • Instagram
  • Facebook
  • YouTube
  • LinkedIn
  • Discord

©2026 FSHD Society. All Rights Reserved.

  • Inclusion et équité
  • Politique de confidentialité
  • Finances
  • Glossaire
  • Nous contacter
We've detected you might be speaking a different language. Do you want to change to:
Change language to English English
Change language to English English
Change language to العربية العربية
Change language to Español de México Español de México
Français du Canada
Change language to 简体中文 简体中文
Change Language
Close and do not switch language
Français du Canada
English العربية Español de México 简体中文