Lieu de rassemblement

Name: Young Adults: Physical Therapy for Young Adults with FSHD
Start: 2026-12-07T20:00:00-05:00
End: 2026-12-07T21:00:00-05:00
Location: Réunion virtuelle Zoom

septembre 2026
September 2026 Feeling Fit with FSHD – Chair Yoga

En vedette Sep 10 @ 7:00 pm - 20:00 heures Se sentir en forme avec la FSHD

Réunion virtuelle Zoom ,États-Unis

Sept 10, 2026 | 7:00-8:00pm ET Chair Yoga This class, taught by Donna Russo, BA in Dance from Mercyhurst University and certified in Chair Yoga, concentrates on breathing techniques and meditation to help relieve stress. Donna is familiar with adapting Yoga. Yoga is for everyone: it reduces stress, increases flexibility, relaxes your breathing, creates body […]
September 2026 Wellness Hour Meeting – Click to Register

En vedette Sep 14 @ 8:00 am - 17:00 heures Heure du bien-être

Réunion virtuelle Zoom ,États-Unis

Sept 14, 2026 | 4:30-6:00pm ET Exploring the Possibilities for Patient Led Research on FSHD Do you have health concerns related to FSHD that no one in the medical community is addressing? Join us to explore the emerging field of Patient Led Research and how we could apply it to FSHD. Register Now Together, we […]
September 2026 Weekend Wellness Hour

En vedette Sep 26 @ 1:00 pm - 14:00 heures

Réunion virtuelle Zoom ,États-Unis

Sept 26, 2026 | 1:00-2:00pm ET Join us for our next Weekend Wellness Hour, an open forum gathering designed for members of the international FSHD community who are available on the last Saturday of most months. This welcoming space brings together individuals at every stage of the FSHD journey, from newly diagnosed to long-experienced community […]
September 2026 CarePartner Hour

En vedette Sep 29 @ 8:00 pm - 21:00 heures Heure du partenaire de soins

Réunion virtuelle Zoom ,États-Unis

Sept 29, 2026 This meeting is for those providing care to loved ones with FSHD. This virtual meeting is a safe and supportive space to share your experiences, challenges, and helpful tips with other caregivers. Register Now
octobre 2026
Young Adults: Physical Therapy for Young Adults with FSHD

En vedette Oct 5 @ 8:00 pm - 21:00 heures Jeunes adultes

Réunion virtuelle Zoom ,États-Unis

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT Join us to speak with a physical therapist whose patient has benefited from a PT program. Register NEW DATE AND TIME: Third Monday of every OTHER month. We will meet in February, April, June, August, October, December in 2026. FSHD […]
Table ronde des parents

En vedette Oct 20 @ 8:00 pm - 21:00 heures Table ronde des parents

Réunion virtuelle Zoom ,États-Unis

Parents' Roundtable 8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT New Schedule: The Parents' Roundtable will meet quarterly starting in 2026. We will meet in January, April, July, and October of 2026. Join us for our Parents’ Roundtable on the 3rd Tuesday, where parents meet to exchange ideas, […]
Décembre 2026
Young Adults: Physical Therapy for Young Adults with FSHD

En vedette Déc 7 @ 8:00 pm - 21:00 heures Jeunes adultes

Réunion virtuelle Zoom ,États-Unis

8:00 pm ET | 7:00 pm CT | 6:00 pm MT | 5:00 pm PT Join us to speak with a physical therapist whose patient has benefited from a PT program. Register NEW DATE AND TIME: Third Monday of every OTHER month. We will meet in February, April, June, August, October, December in 2026. FSHD […]

septembre 2026

octobre 2026

Décembre 2026