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We’re here to help. Whether you have questions about FSHD, need support, or want to learn more about getting involved, we’d love to hear from you. Fill out the form below, and a member of our team will be in touch.

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Our FSHD Navigators provide one-on-one guidance for individuals and families seeking information, resources, and guidance. If you have questions about managing FSHD or finding expert care, our team is here for you.

Mailing Address

For Donations:
Société FSHD
Boîte postale 70218
Philadelphie, PA 19176-0218

For All Other Mail:
Société FSHD
1035 Bedford Street
Olde Towne Square #1073
Abington, MA 02351

Téléphone

(781) 301-6060